This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Wed May 22, 2013 11:35 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 70 posts ]  Go to page Previous  1, 2, 3, 4, 5  Next
Author Message
 Post subject:
PostPosted: Mon Feb 07, 2011 11:45 am 
Offline
Family Elder
User avatar

Joined: Tue May 19, 2009 3:00 pm
Posts: 197
Location: Toronto, Canada
Thanks for the update! Glad to hear everything is going well!


Top
 Profile  
 
 Post subject:
PostPosted: Tue Apr 05, 2011 10:17 am 
Offline
Family Elder
User avatar

Joined: Sat Nov 15, 2008 4:00 pm
Posts: 282
Location: Rovaniemi
9 month rapport: everything is so good, and my wife has been able to do quite serious gym training. Especially her legs are responding very well for training, yesterday she was doing basic squats, with nearly 60 kg:s ( 5 reps) on her shoulder and then with 50 kg x 8 reps. Last spring this kind of exercise was not possible.


Top
 Profile  
 
 Post subject:
PostPosted: Tue Apr 05, 2011 11:51 am 
Offline
Family Elder

Joined: Mon Aug 23, 2010 3:00 pm
Posts: 597
60kg = 132 pounds. Wow, remind me not to pick a fight with her. :-)


Top
 Profile  
 
 Post subject:
PostPosted: Tue Apr 05, 2011 12:02 pm 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California
Hi Ernst,
Pleased to hear your wife is doing so well.
Could you remind me what she had treated? Is she still on blood thinners? Is she sleeping on an inclined bed? Also is she doing any special diets and taking supplements?

Thanks x


Top
 Profile  
 
 Post subject:
PostPosted: Tue Apr 05, 2011 12:07 pm 
Offline
Family Member
User avatar

Joined: Fri Oct 01, 2010 3:00 pm
Posts: 47
Great news! I just looked back at othter things you posted (like the article with the picture). I am half-Finnish so I can understand that that is Finnish and a few words here and there and that's about it! Glad to hear she is doing so well, the mildness of her symptoms sounds like mind, with the addition of also having had optic neuritis several times in both eyes (Separately and together) and diplopia. Kippis!


Top
 Profile  
 
 Post subject:
PostPosted: Tue Apr 05, 2011 10:25 pm 
Offline
Family Elder
User avatar

Joined: Sat Nov 15, 2008 4:00 pm
Posts: 282
Location: Rovaniemi
LR1234 wrote:
Hi Ernst,
Pleased to hear your wife is doing so well.
Could you remind me what she had treated? Is she still on blood thinners? Is she sleeping on an inclined bed? Also is she doing any special diets and taking supplements?

Thanks x


Thank you,

She got her MS dx in 2006, nasty big surprise with serious symptoms (her right side of body didnt work, extreme fatique, etc). It was about 3-4 months difficult times and then her condition got better. We started best-bet-diet quite after her dx and some supplements (especially vitamin D). She also got rebif, but it wasn't good (her symptoms got worse and thrombosytes got high).
Ok, first 3 years was quite ok, with minor symptoms.. but then little by little symptoms sneaked --> more fatique, depression, "heavy legs", balance issues, spasticity, etc. Exercising became more difficult and not so enjoyable, jogging changed to walking.
In June we went to Poland and her left jugular was narrowed and fixed wigh angioplasty. The impact was incredible. (i wrote it earlier here).

After treatment we dediced to continue with best-bet-diet and I also read Terry Wahls ideas, and got some ideas from her. She also takes some supplements:
- Alpha lipoic acid (600 mg / day)
- vitamin D about 125 µg
- B-vitamins, especially B12
- omega-3
- probiots
- etc..

and exercise is very important. We decided that weight lifting is something wich could have big effect on MS. I red some trials with doing weights with MS and results were promising. (and Terry Wahls experiment was very interesting too). Weight training is quite a stimulus to muscle/brain/nerve system.. and also to circulation. We try to exercise also stamina, so there will be some intervals with weights - stamina - weights. But so far, so good.

ps. she hasnt trained with weights before, so squat results are quite impressvie after 3 months training..


Top
 Profile  
 
 Post subject:
PostPosted: Wed Apr 06, 2011 3:57 am 
Offline
Family Elder

Joined: Wed Feb 11, 2009 4:00 pm
Posts: 1419
Location: California
Cool, thanks for the detailed reply. I think its always good to know what other things people are doing at the same time.
It could well be the CCSVI procedure that has helped but also the weights/diet/supps have contributed. Whatever it is I am so glad it is working!! Keep us posted xx


Top
 Profile  
 
 Post subject:
PostPosted: Sat Jun 25, 2011 3:55 pm 
Offline
Family Elder
User avatar

Joined: Sat Nov 15, 2008 4:00 pm
Posts: 282
Location: Rovaniemi
Today, its exactly one year from my wife's operation - and all the improvements she got, are still there. She had her neurology check on may, and her status was "normal", and EDSS was 0.
since operation she has been exercising quite a lot, cause she got back the joy of training. Last six months we have been on gym.. and she is getting stronger, technically good squat now over 70 kilos. I have to train harder or she will beat me someday with squatting :oops:
I am so thankful about this all.. Paolo Zamboni is genious!

Image


Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 13, 2011 12:17 pm 
Offline
Family Elder
User avatar

Joined: Sat Nov 15, 2008 4:00 pm
Posts: 282
Location: Rovaniemi
Nearly 14 months from op and everything is fine. One more "ultimate test" was when wife went to spinning class in summer and there was very high temperature in gym.. and once again it was just fine. Before one problem was heat, she couldn't be in sauna proberly.. but since op it has been possible.

PS. we had our 10:th wedding day couple of days ago.. I FORGOT that, ooooppss. She forgived me when I made this short video:
http://www.youtube.com/watch?v=p_QCKxeQAlg


Last edited by Ernst on Sat Aug 13, 2011 2:53 pm, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 13, 2011 12:36 pm 
Offline
Family Elder
User avatar

Joined: Thu Jul 09, 2009 3:00 pm
Posts: 1274
Very, very beautiful.


Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 13, 2011 3:45 pm 
Offline
Family Elder
User avatar

Joined: Mon Sep 10, 2007 3:00 pm
Posts: 4676
Location: southern California
Ernst--
So happy for you and Marja. Wonderful news!! She looks great, and I know you've been a tireless and loving support. Happy 10th anniversary to you both.
best,
cheer

_________________
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


Top
 Profile  
 
 Post subject:
PostPosted: Sat Aug 13, 2011 5:11 pm 
Offline
Family Elder
User avatar

Joined: Sun Dec 19, 2010 4:00 pm
Posts: 216
Location: USA
Thank you for sharing your CCSVI journey, for your beautiful wife. You have a beautiful family also. Loved all the videos.

Happy 10th Anniversary to you and your lovely wife. You and Marja are blessed. May she keep all her improvements forever.
CD

_________________
Where there is a will, there is a way. "HOPE"

CCSVI Procedure December 2010


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 14, 2011 2:00 am 
Offline
Family Elder

Joined: Wed Jul 29, 2009 3:00 pm
Posts: 1099
Location: Slovakia, Europe
Ernst wrote:
PS. we had our 10:th wedding day couple of days ago..

Happy 10th anniversary :)
Erika

_________________
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse


Top
 Profile  
 
 Post subject:
PostPosted: Sun Aug 14, 2011 8:34 am 
Offline
Family Elder
User avatar

Joined: Sat Nov 15, 2008 4:00 pm
Posts: 282
Location: Rovaniemi
Thank you for your kind comments :) ..and true, she feels great and is such a fighter! That's also one reason, she is doing so good.


Top
 Profile  
 
 Post subject: Re:
PostPosted: Wed Oct 19, 2011 12:17 am 
Offline
Family Elder
User avatar

Joined: Sat Nov 15, 2008 4:00 pm
Posts: 282
Location: Rovaniemi
Ernst wrote:
and exercise is very important. We decided that weight lifting is something wich could have big effect on MS. I red some trials with doing weights with MS and results were promising. (and Terry Wahls experiment was very interesting too). Weight training is quite a stimulus to muscle/brain/nerve system.. and also to circulation. We try to exercise also stamina, so there will be some intervals with weights - stamina - weights. But so far, so good.

ps. she hasnt trained with weights before, so squat results are quite impressvie after 3 months training..



...And still going strong, now 1 year and 4 months from procedure in Poland. Situation has been just wonderful and symptoms (fatique, weakness in her right side of body, "heavy legs", etc.) have been gone. She continues with best possible after-care and treatment: nutrition and exercise --> aerobic training (spinning) and weight training. She can do hard exercises and still getting stronger. Yesterday she squatted nearly 80 kilos and that is very, very ammazing.. after 6-8 months with weights.


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 70 posts ]  Go to page Previous  1, 2, 3, 4, 5  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. 7&8 June - Poland. My turn!

[ Go to pageGo to page: 1, 2 ]

mtf

29

2111

Mon May 24, 2010 12:56 pm

Zeureka View the latest post

There are no new unread posts for this topic. esta and poland - finally my turn

[ Go to pageGo to page: 1, 2, 3, 4 ]

esta

51

6806

Sat May 29, 2010 10:02 am

esta View the latest post

There are no new unread posts for this topic. Anyone in Tychy / Poland with Dr. Kostecki next week?

girl69

2

1104

Tue Mar 23, 2010 5:02 am

girl69 View the latest post

There are no new unread posts for this topic. oxygen and dreaming

[ Go to pageGo to page: 1, 2 ]

Cece

18

2877

Mon Oct 18, 2010 5:51 pm

1eye View the latest post

There are no new unread posts for this topic. Post CCSVI dreaming and emotional stuff

turbotaguy

3

917

Mon Oct 18, 2010 8:52 am

CRHInv View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: