This Is MS Multiple Sclerosis Community: Knowledge & Support

[adamt]

Soon i will be having a doppler scan/test to see if i have CCSVI.

But having read how patients have shown no stenosis after a doppler but when they have a venogram/dye injected, it is found they have stenosis.


I am planning to have an MRI scan the day after the doppler, but have the option to go home after the doppler if negative.


So i was wondering, is there anything i should ask / request , either doppler protocol or ways to scan, to ensure i am not misdiagnosed with not having CCSVI?

If i am negative after a doppler scan will there be any point paying for an MRI scan the next day?

Or does the MRI scan show a clearer view of any stenosis?

- - i cant have the procedure unless i show stenosis

thanks

[laura383]

you may have these already, but here are Dr Simka's notes on how to test according to Dr Zamboni's discovery using Doppler

http://csvi-ms.net/files/multiple%20sclerosis-USG.pdf

and Dr Haacke's website with his MRV and other testing protocol

http://www.ms-mri.com/potential.php

You can print them out and take them with you for the technicians.

[adamt]

thanks Laura for the links, i will show the doctor.


If i am negative after a doppler scan will there be any point paying for an MRI scan the next day?

Or does the MRI scan show a clearer view of any stenosis?

- - i cant have the procedure unless i show stenosis

[Cece]

the two tests complement each other...there could be ccsvi that would show up on the doppler but not the mrv. Or it could show up on the mrv but not the doppler. And both could be negative but ccsvi could still show up on the cathether venogram. Or the doppler or mrv could be positive but then nothing found on the catheter venogram!!

Clear as mud? If it were me I'd want them to do as thorough an investigation as possible. Best wishes!

[adamt]

Thanks cece,

as ill be getting tested/treated in a foreign country whos first language isnt english, do you think the pictures of the head/neck in lauras links would be sufficient to guide the doctor on where to scan?

i doubt they could read English

Is there aything in particular i should request to prevent misdiagnoses with the doppler?

thanks

[Cece]

They have never done this before? and they are relying on you to provide the info on how to do it?

If that is the case, you might have to get those instructions translated into the language. Maybe someone else would know how to go about this? Or post here for someone bilingual to assist? Or have they already been released in other languages and are on the internet somewhere?

[laura383]

Google Translate is good. Go to Google, enter "translate" and you will get the program. There you can upload the document to be translated.

Where are you going?

[adamt]

sorry i didnt explain myself clearly,

The doxctor doing the doppler is a angiologist (vessels specialist).
However i dont know if they are fully clued up on CCSVI

So was hoping bringing along this guide would prevent misdiagnoses.

[Cece]

lol...yes, when I asked if they'd never done it before, I meant never done a transcranial ultrasound doppler specifically to look for ccsvi....

Google translate might not be the best solution, I've read some odd-sounding stuff that's been translated that way.

I agree with the idea of going in as prepared as you can. And then trusting in the doctor you have chosen.

[adamt]

ok thanks ill try and get a good translation if not ill hope they can read English