This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu Jun 20, 2013 4:59 am


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 6 posts ] 
Author Message
 Post subject: no new
PostPosted: Fri Jun 18, 2010 6:01 am 
Offline
Family Member
User avatar

Joined: Thu Jan 01, 2009 4:00 pm
Posts: 73
lesions /i have not had my cord mri 4 3 yrs / that is where my problems have occured still have 4 good size large 1 s but no new nothing / i cant believe that they r not offering this procedure at least angio 2 us / why will it take years 2 prove at least it helps but they won t hesitate 2 send 1000 of dollars worth of medicine that they arent sure works / just keep our friggin veins open/ seems pretty simple just not 2 insurance companies/ STAY STRONG ALL :D :D


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jun 18, 2010 6:35 am 
Offline
Family Elder
User avatar

Joined: Mon Feb 14, 2005 4:00 pm
Posts: 1364
Location: London
Cheers Wobbly! I hope you continue to avoid lesions and see improvements. I think restenosis is quite a risk even with stents...also I bet they haven't looked at all the veins which drain the CNS...I saw from Cureo's posting that the left iliac vein could also be a culprit...

_________________
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jun 18, 2010 7:09 am 
Offline
Family Elder
User avatar

Joined: Wed Jul 27, 2005 3:00 pm
Posts: 2735
Location: Sydney, Australia
gibbledygook wrote:
I saw from Cureo's posting that the left iliac vein could also be a culprit...
I am guesing you are referring to my post, quoting Dr Sclafarni's post at http://www.thisisms.com/ftopicp-117550.html#117550

If I am not mistake, Wobbly was treated by Paulo Zomboni's team, which highlighted this technique to Dr Sclafarni, so I would be guessing the technique was as used on Wobbly?


Top
 Profile  
 
 Post subject: YES
PostPosted: Fri Jun 18, 2010 7:16 am 
Offline
Family Member
User avatar

Joined: Thu Jan 01, 2009 4:00 pm
Posts: 73
i was on the 1st 4 team that went 2 italy 19 months ago 8)


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jun 18, 2010 11:40 am 
Offline
Family Elder
User avatar

Joined: Thu Sep 10, 2009 3:00 pm
Posts: 550
Location: Charlotte, NC
Wow Wobbly! What great news!!!!!
How are you feeling?

_________________
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jun 18, 2010 4:20 pm 
Offline
Family Member
User avatar

Joined: Thu Jan 01, 2009 4:00 pm
Posts: 73
abt the same / but that is probobly good/ 4 big lesions on the spine is what it is / i no that this has a role why not just offer the angio/ seems like BS 2 me/ peace :o :o


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 6 posts ] 

All times are UTC - 8 hours [ DST ]


Who is online

Users browsing this forum: vesta


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of personal Multiple Sclerosis stories on Experience Project. Experience Project is an anonymous community where people connect through their life experiences, made by the same people who built This is MS. With over 30 million personal stories about every possible life experience, you can quickly find people like you!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers

Advertise on the premier multiple sclerosis forum