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A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

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Postby wobbly » Fri Jun 18, 2010 6:01 am

lesions /i have not had my cord mri 4 3 yrs / that is where my problems have occured still have 4 good size large 1 s but no new nothing / i cant believe that they r not offering this procedure at least angio 2 us / why will it take years 2 prove at least it helps but they won t hesitate 2 send 1000 of dollars worth of medicine that they arent sure works / just keep our friggin veins open/ seems pretty simple just not 2 insurance companies/ STAY STRONG ALL :D :D
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Postby gibbledygook » Fri Jun 18, 2010 6:35 am

Cheers Wobbly! I hope you continue to avoid lesions and see improvements. I think restenosis is quite a risk even with stents...also I bet they haven't looked at all the veins which drain the CNS...I saw from Cureo's posting that the left iliac vein could also be a culprit...
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby CureOrBust » Fri Jun 18, 2010 7:09 am

gibbledygook wrote:I saw from Cureo's posting that the left iliac vein could also be a culprit...
I am guesing you are referring to my post, quoting Dr Sclafarni's post at http://www.thisisms.com/ftopicp-117550.html#117550

If I am not mistake, Wobbly was treated by Paulo Zomboni's team, which highlighted this technique to Dr Sclafarni, so I would be guessing the technique was as used on Wobbly?
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YES

Postby wobbly » Fri Jun 18, 2010 7:16 am

i was on the 1st 4 team that went 2 italy 19 months ago 8)
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Postby magoo » Fri Jun 18, 2010 11:40 am

Wow Wobbly! What great news!!!!!
How are you feeling?
Rhonda~
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby wobbly » Fri Jun 18, 2010 4:20 pm

abt the same / but that is probobly good/ 4 big lesions on the spine is what it is / i no that this has a role why not just offer the angio/ seems like BS 2 me/ peace :o :o
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