One last thought before I sign off and we start our liberation journey.
I want to thank you (many of you) - you know who you are for helping us get to this point. 8 months ago I didn't even know what MS was. 6 months ago I'd have said stem-cells are how MS will be beaten, and now I know CCSVI makes too much sense that it is going to be the future. I've literally spent 4+ hours a day researching CCSVI, talking to doctors, learning all I could, reading medical papers. CCSVI is going to be a huge breakthrough. Just wait and see ... again, if the MS Societies aren't serving your interests and you really believe that, don't give them the time of day ... give to a charity that will listen to you (like the CCSVI Alliance). Don't forget that the MS Society does do some good ... but when any organization loses focus on what's best for its members in hopes of making more money ... it is time to move on to bigger and better things.
Thank you for getting me to the place where we had 3 options in several states within 3 weeks of one another for doctors to do the treatment, and I know of 5 others doing the treatment behind the scenes that many on this board and other boards don't even know about.
My advice is be active in searching out doctors - IRs and Vascular Surgeons. They ARE willing to help if you ask. Maybe not all of them, but get them interested - keep them interested. Even if you choose another doctor in the end, they will help someone else! (I know that for a fact, I've been there).
I am not abandoning CCSVI by any means. I'm going to be around to raise funds, both for the CCSVI Alliance, Dr. Sclafani (to get him back to plumbing) and most importantly to make sure each and every one of you who has helped me, gets treated as well ...
That said, I do promise to help you all ...
I'm not going to discuss doctors with anyone until after Monday (when my wife gets treatment) - and since we're vacationing next week probably the week after that ... but after that, I will point you all in the right directions so you can be treated as well. It's all I can do to "pay it forward" like someone did for me when I first came to TIMS. Thanks MB and others.
On that note, it's time for me to sign off ... you guys have been great. Keep fighting, CCSVI is IT. There will be more to learn, but it's going to change the way doctors learn about MS and how it's treated (it already has).
There are going to be those who decry you as insane in regards to CCSVI ... but know they want their loved ones treated for it. Isn't that odd? Keep fighting ... the ball is rolling and it's picking up speed.
Again, for those who we've PMd back and forth, I'll be in touch ... for those who we haven't but are interested ... I want to help each and every one of you ... so keep in touch.