My husband has PPMS dx'ed in 04. Uses a cane full time and a scooter locally. Never on any MS drugs except for baclofen and Botox which he highly recommends for tightness of the legs and spascity. Just returned from Poland last night. 6 MS patients were treated June 15th and 2 with severe disabilities. 1 lady had no mobility, poor eyesight & unable to speak. Within 24 -48 hrs began to wiggle her fingers and toes, first time in 10 yrs and also answered a question with words she was unable to do before. Her sister Maja gave me permission to report her progress. The other lady, I had touched her hand (she hadn't the ability to shake my hand) the day before the procedure and it was ice cold, immediately following the procedure her hands and feet were warm, I was very impressed. She was elated. The next day she said she could feel her legs for the first time in years. Another man began to sweat for the first time. Sorry, I can't remember the types of MS of everyone but I had to let you know some of the outcomes that I have seen for myself.
Now for my husband, he is the perverbial pessimist and if you asked him why he was doing this he would explain "to make my wife happy"! and in reality, if he didnot take the opportunity and it could have helped him he would have regretted it forever. So with no expectations, he went along for the journey. He was told not to expect any improvements for up to 6 mos and following the treatment he said he didnot feel any different, no surprise there...Incidently, I video taped him the night before the procedure. The following evening, after the procedure we went out to dinner with some wonderful and amazing people we met there. On our way he stopped and looked at me and said " my foot isnot dropping"! This is huge...Plus it was facing in the forward direction instead of out to the side. He could not believe that this was actually happening to him but he was still skeptic. Next, I discovered that along his love handles there were dark red surface veins and noticebly very cold to the touch. Gone...When I video-taped him 24hrs after the procedure he walked better but amazingly he could lift both of his feet onto the top of the bed. Still skeptic though. Hasnot complained of being tired and before the procedure he struggled with great difficulty to get out of a chair or bed while getting up but now he has noticed that it is a lot easier for him, he alludes this to getting alot of rest while in Poland. So we have the next 6 mos or so to see what is next. He shared a thought with me with a smile on his face that maybe he can resume playing pool, a game he loves.
Why everyone is different with their outcomes I certainly cannot explain it but I certainly seen enough to say it is worth the expense and time. Hope you all forgive me for this long worded report but I am so excited to share our experience. He had 2 angioplasties in his jugulars & no stents and if he needs it to be redone so be it but by that time we hope Canada will have approved the procedure..