bohemianbill wrote:L I am sorry for your position. Laurie was diagnosed in 1990 and ended up in a wheel chair in 1998. Gradual but steady downhill progression.
The Liberation puts us both back on offense, the last 3 years has been more of an exsistance rather than living life. It was exciting watching the video's of Dave and Nanny. Dave is identical to my Laurie, even on most of the same drugs. Do you know were he had his Liberation?
Are you considering this option yourself? As i mentioned in my original post, we are from Canada, specifically Windsor, Ontario. I have looked at flights to Poland and it will be a 15-20 hour day. Sure wish I could find something closer. We are on a waiting list for Scotland (Essential Health Clinic) but I do not think they are on line yet.
L if you see any others please PM me so that i can follow up.
esta wrote:hi bojemian bill
i thought i wrote you after I was liberated in katawice may 6th. i have restenosed, and am not hesitating to return and pray for a stent the procedure was so great!! i think i am 8 on that scale, but all self diagnosed.
we are the ones who took an electric chair and fried the battery. i see our new battery recharger doesn't have the dreaded 'swith' so i know we'll be fine.
we flew from calgary to frankfurt to krakow. i have since learned we could have gone right to katawice. my only strong recomendation is to have her chair directly sent to katawice...we went air canada/luftansa and they were great. my other suggestion is to always stay in a chair, they will get you everywhere. they even took al, 4 of us together because of me...i couldn't imaging being left to our own devices in frankfurt, like maybe a charter airline might, but ck into it all.. frankfurt is huge...buses everywhere, but they are astutely trained in disabilites and have amazing equipment to handle them all.
esta wrote:to all
i have PPMS, my changes were significant after my procedure, enough so, i am going back, and hope, once again things will improve like before.
i wouldn't hesitate. may i suggest taking the homeopathic remedy Arnica for jet lag. it's fabulous. we were up for 36 hrs. it is far worse coming home, but Arnica a few times and lots of rest and its all over in a week...
i believe, if nothing else, our jugulars should not reflux into our brain. this is why i am going back. at least then i feel i have half a chance at a good life.
bohemianbill-i have a Golden' electric wheelchair. (apparently no one else does), just make sure it gets sent all the way to your destination.
what i meant about staying in the chair is, some people can stand for security, transfers etc., i'm saying just don't...as they then deal with you in the one way and don't expect anymore from you. it's tiring enough.
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