Not agreeing nor disagreeing but through history research was led by first hand anecdotal data, which they eventually, purposely got away from because, unfiltered, it led research astray.belsadie wrote:Let's stop this nonsense and admit that someone who thinks our of the box has hit on a plausible explanation that's been experienced by so many disabled persons.
atswc wrote:It fixed allot of thing i can walk like a person now ) i can stand tall like a real person ) i dont get tired any more i can hold my bladder ) my brain is better, clear. my back my legs everything just WORKS!!
bulgaria dr P is the best out there, worth £4900 that i paid (would have paid 20.000)
because it worked
sofia wrote:Hello Daisy
I was diagnosed with rrms in 2002. I've had a few relapses, but more or less full recovery after each relaps, and no fatigue to speal of.
But spring 2009 I got a vertigo relaps that just didn't clear up, I also stared feeling fatigued, and generally weaker all the time.
Neurologist did edss score on me be procedure and gave med 0.0, but my quality of life was shite. My eyesight was not right, but I did not have reduced vision or double vision. But it was not right. Vertigo could make me throw up, feeling constantly unwell, but it did not make me fall. Legs were weak, but I could walk far. And completly nocked out by fatigue and vertigo, feeling sick.
It was a side of ms that I had nevered experienced before, one that I didn't know exsisted. But yes maybe it felt a bit like progression with relapses. I had not been given diagnosis spms, but I think I was heading that way.
RPMS is something we don't hear about that much. How is your husban doing, how is his disease developing? Will he be having procedure, can he have medication or is that not for him?
Cece wrote:I feel sad when I read that ccsvi treatment is not good for ppms.... The promise or unproven hope of ccsvi treatment for ppms is that progression will stop. So PPMSers may not see the recovery that some of the other groups (who experience recovery in their MS in general, back and forth) do. PPMSers may not get to film youtube videos showing them jumping. But if PPMSers get to have their progression stopped, right where they are...that is huge, that is something we have never had before as an outcome for a treatment for MS.
Still there have been some reports of PPMSers who did show improvements...all is not yet known, but it is good to go into this with reasonable expectations...and I personally hope that the results beat those expectations, for all of us.
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