False Creek Surgical

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

False Creek Surgical

Postby PCakes » Sat Jun 19, 2010 9:34 pm

Hello all,

Just home from a week away..picked up a voicemail from the husband of a woman scanned at False Creek. They flew in for the scan..results of doppler were negative? Said Dr C was unavailable ..scan was preformed by another? This woman has a very aggressive case.. 7 years from no symptoms to 'running out of wait'. I was very surprised to hear the outcome.. and then it ocurred to me that news from FCSC is very quiet of late? Does anyone have any light to shed on this?

'scuse the disjoint..mind is all jet lag jumbled..pCakes
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Postby joanp » Sat Jun 19, 2010 10:08 pm

in my opinion, it is unlikely she does not have ccsvi...tho not impossible. if money is no object, they should contact the hubbard foundation in california and get real results there plus the procedure. Hubbardfoundation.org
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Postby PCakes » Sun Jun 20, 2010 7:21 am

Thanks Joanp... had the same thought and called last night..
Is there any new news of False Creek Surgical? Dr Godley and his team were quite vocal and involved back in April?
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Postby joanp » Sun Jun 20, 2010 7:40 am

It is likely that godfrey and his team must wait for approval first. However, with the accelerated pace of MP involvement in canada and with evidence hard to deny, I don't think this procedure offered in canada to everyone is that far off.
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Postby thornyrose76 » Sun Jun 20, 2010 12:26 pm

God, I hope you're right!
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When?

Postby BELOU » Sun Jun 20, 2010 5:04 pm

Any idea when False Creek is going to be IRB approved?
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Postby welshman » Sun Jun 20, 2010 8:14 pm

I understand that as a "private" clinic False Creek is not able as yet to offer treatment, despite Dr G wanting to do so (very much) as this is a profitable opportunity. To be able to offer actual treatment, the Clinic would have to be involved in / linked to a clinical trial; the University of British Columbia will shortly be starting its studies, initially imaging only with treatment trials following. False Creek could (might be forced to) wait for UBC, or it could link with another institution in a study relationship - the other partner doesn't even need to be in Canada.
Another "problem" is the need for hospital support which right now is I believe being denied thanks to College of Physicians etc.
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Postby Whitey » Sun Jun 20, 2010 8:51 pm

It could be Lyme's Disease if they tested negative for CCSVI. Ask if they were tested, and tell them to get re-tested as there are sometimes false negatives.
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Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Postby falsecreekcare » Thu Jun 24, 2010 4:21 pm

Hello everyone.
At this time our Centre does not have new information on the ability to offer clinical trials. However our Doctors and staff have not given up. We are continuing to seek different options and new opportunities for treatment.
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Postby blossom » Thu Jun 24, 2010 5:02 pm

thank you falsecreek. i'm from america and i like news like that. better yet will be news that you are testing and treating. hopefully the canadian and american medical systems will wise up soon to the FACTthey are witholding a treatment that is helping many people. this whole thing is so wrong and cruel they are doing. keep up the good work.
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Re: Chronic Cerebrospinal Venous Insufficiency (CCSVI)

Postby thornyrose76 » Thu Jun 24, 2010 6:31 pm

falsecreekcare wrote:Hello everyone.
At this time our Centre does not have new information on the ability to offer clinical trials. However our Doctors and staff have not given up. We are continuing to seek different options and new opportunities for treatment.


Please don't give up, I so desperately need this treatment and fear I simply cannot afford to go overseas, possibly even the US. Please keep trying, please.
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Postby PCakes » Thu Jun 24, 2010 9:05 pm

Thank you False Creek!!! .. for fighting for us and for taking time to post this reply... !
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