North52 wrote:Dear Andrea,
In answer to the question about what the innominate vein is, I think you will most easily find the answer in the following diagram.
There is both a left and right innominate vein. Also keep in mind that innnominate is used interchangeably with the brachiocephalic vein.
Sorry to hear of your worsening. I should mention that I also have an obstruction of the innominate vein, but on my left side. The obstruction is 100%. I had a first catheter venogram about 4 months ago but they did not feel comfortable attempting to open up this lesion at the time. They did managed to open my azygous from an 80% stenosis to 50%. Even with this one lesion opened, I derived define improvement in my gait, cognition, fatigue and spasticity. These improvement slowly resolved over the following weeks and month.
Of note is that immediately after the procedure, I developed numbness of all the fingertips of all 10 of my fingers. This type of symptom corresponds to a lesion that would be localized in the spinal cord. I have seen similar symptoms reported here on the site. I strongly suspect that this was a result of knocking off a collateral that my spinal cord was dependent on. On my venogram, there were clear collaterals entering the azygous vein and I suspect one of the collateral may have clotted or otherwise been damaged with ballooning. I think this is an underappreciated risk of the the procedure.
A this point in time, I am much worse than pre-angioplasty, but this is largely the result of an unusually severe exacerbation that I am having at the moment. My EDSS seems to be decreasing day by day. Presently on steroids that are not making a difference.
Although this worsening followed my angio by 4 months, I am not convinced it was caused by it, although it might be. I suspect this severe exacerbation may be secondary to the 4 month Tysabri drug holiday that I took. I just read that there are reports of patients developing severe exacerbations usually after about 3 months of drug holiday, with persistent progressions in EDSS of about 3 points.
I have not yet given up on angioplasty and I am booked in about two weeks to try and open up the 100% occlusion of my left brachiocephalic. Chances of getting though, however seem slim. Just hope I make it to that point with some remaining mobility.
Renoandi wrote:[I was told by the Neurologist that I could not do steroids for a couple of months because I messed with my veins. I was not put on any blood thinners, have you heard this?
Renoandi wrote:I was told by the Neurologist that I could not do steroids for a couple of months because I messed with my veins. I was not put on any blood thinners, have you heard this?
Renoandi wrote:I really feel like I am having a relapse, this is why the follow up doppler is so important to me. I need to know if the refulx is worse or better than before. I was told by the Neurologist that I could not do steroids for a couple of months because I messed with my veins. I was not put on any blood thinners, have you heard this?
jimmylegs wrote:ikulo just wondering, have you had testing to make sure your nutrient status matches healthy controls and not the usual MS patient nutritional profile?
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