newveins wrote:I had angioplasty a month ago 80-90% stenosed in both jugs and azygos. Darn, no improvements, no sedation during the procedure so I could feel the balloons otherwise I might have thought they skipped that part as I felt exactly the same during and after the procedure not even the warm hand/feet bit.
Well, I hope that I am slow to improve and that I will be removing this post when lots of improvements slowly show up the next couple of months. I have had MS for many years and have plenty of symptoms that could be improved walk poorly, type poorly, poor bladder function, insomnia etc fatigue though is not a problem.
So bizarre that a few of us can be so plugged up and have no improvements while most with seemingly the same have lots. There sure is something we don't know about ccsvi yet.
Don't let the ratio of responders versus nonresponders as reflected on this site give you the false notion that the vast majority of people undergoing the liberation procedure see significant improvement. Although very little tracking of outcome results has been done, Dr. Gary Siskin, the IR doing the liberation procedure in Albany, estimates that about one third of his patients see no improvement at all, and another third only see slight improvement.
What you see reflected on Internet forums and YouTube videos is the natural phenomenon of people who have positive experiences to report to be much more inclined to make their results public than those with negative experiences. This isn't an attempt at subterfuge on anybody's part, but merely human nature.
CCSVI holds a tremendous amount of promise, but there is currently very little scientific consensus as to the role it actually plays in the MS disease process, and there are tremendous differences in the way the procedure is performed from the Dr. to Dr. Lots still to be learned, and liberation procedure best practices need desperately to be established.
Don't get down on yourself for not experiencing your hoped-for results. Based on my extensive contacts with patients both here on the web and personally, you are far from alone.