pklittle wrote:I am wondering how much of an oddity I am. I had 3 blockages treated with angioplasty this past week, and I did not benefit at all. Not even the slightest improvement.
We hear of so many successes, but just how many are like me that had blockages treated and are the same as before?
No, I have not re-stenosed.. ultrasound the next day confirmed that.
Sasani wrote:I had my procedure on September 13th, and sadly saw no changes at all. In fact I have continued to progress and can no longer even feed myself. But.....if I had not had it done I would always be thinking "what if".
pklittle wrote:pklittle wrote:pklittle wrote:My initial venogram and angioplasty on 3 areas was done in Albany, no benefits realized.
Consulted and tested by a LOCAL FSIR (yeah!) on 8/24/2010. He did a thorough job using venogram to check my lower veins for MT and also the IJR, vena cava, illiac (don't know all the names). They entered from both sides. All was flowing great except for my left IJR which is a whole mess of collateral veins that he couldn't get the catheter by to check any further up or do angio. They provided me with a DVD of the entire test and written report as well.
The sad part is, nothing can be done. I guess I'm done. CCSVI got me.
I have learned that my second venogram report is INCORRECT. The doctor was in the WRONG VEIN... thought he was in the left IJV when in fact he was in a smaller vein next to it. Sooooo, my left jug is not as messed up as I have been thinking it was for about a month.
Someone stop this merry-go-round. I wanna get off.
Had an ultrasound of my left jug last Friday. It confirmed that the doctor was NOT in the wrong vein in my followup venogram. So what this means is my left jug has restenosed and grown collaterals since June.
I don't have a clue at this time what the next step is. I'll keep you posted.
pklittle wrote:My initial venogram and angioplasty on 3 areas was done in Albany, no benefits realized. .....
Now I will have an MRV. There are still doubts regarding the state of my left IJV. Sometimes these things are not cut and dried, particularly when more than one doctor is involved. In hindsight I wish I had not started down this road.
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