Ok, I've had the MRV and have the result. After all the uncertainy due to differing opinions, I know ( today anyway) that my left IJV is clotted. I have been advised that aftereffects of removing the clotting are too risky. I continue to progress downward with my mobility and now often use a walker rather than a cane. I am weighing the risks of retreatment and trying to decide whether to get the clot removed anyway. I am told this often doesn't have the desired outcome.
Some positive news.... My vision has improved and this was just confirmed by my annual eye exam. I aced the color test, something I haven't done for about 15 years! also, my vision improved too! I was blown away. So, I know changing blood flow, even though I re-stenosed, did make a difference. That's why I'm mulling over whether to take the risk to try again, in hopes
of gaining more.
I am hoping for vision improvements, congrats on getting those at least.
When the IR said the aftereffects of removing the clot would be risky, what did he mean by that? If it could be removed, then ... it should be, right? I understand the alternative is to try to get it removed but not be successful. Or is it a risk of a piece breaking loose and traveling to the lungs? Or is it thrombolysis drugs injected, so risk of internal bleeding?
If I understand this right, you had three areas treated, two of them have remained open, and one clotted which makes it worse than it was to begin with. I would hope that the two that are open are helping. But if you're progressing, that's not a good sign.
Wish that the answers were easy and the path clear.
Yesterday I told my husband about what Dr. Sclafani's doing with hypoplasia treatment, I'm not sure if I'd want the accelerated version of that as opposed to the every-few-weeks version. Even a vein that is not much to lose could be left as-is for awhile until the technique gets worked out. But I'm also thinking that, at the state of CCSVI treatment today, many who get treated now will need repeating as more is learned, and despite trying to hedge that by going for the best, I'd be surprised if this is one-and-done.