Asher wrote:I visit the CCSVI forum every now and then, out of sheer curiosity. I have read thru both the Procedure Progress Reports and the Did not Work for You Stickies. I realize I should respect anyone's opinion and beliefs. And yet, my jaw can not help dropping at the persistence of the blind belief in CCSVI and the ease at which causality is being assigned (the 'Liberation Procedure' has CAUSED improvement or has CAUSED deterioration) with, to date, no replicable scientific evidence what so ever. The only thing we have is anecdotal evidence from a mixed (all MS forms) and non representative sample of 'it does or does not work'. The only thing we know for sure at this stage is that the procedure costs a lot of money and can potentially cause harm (scarring, clotting, etc.). I respect belief, but it is the business of churches and synagogs, not sound, fact based science or medicine.
No offense, I realize challenging a belief evokes discomfort and even anger. If this is the case, I sincerely apologize.
dania wrote:So, all we really know is that as long as the blood is flowing we see improvements. The question is HOW do we keep the blood flowing?
What concerns me more are those that are found to have CCSVI, are treated, do not re-stenose, yet do not see any improvements. Or I guess worse, is the case CeCe mentioned.dania wrote:Getting improvements then restenosing. And even with another procedure we do not recapture those improvements. For the lucky ones that have not restnosed so far, only time will tell if their veins will remain open. We were all so hopeful that angioplasty was the final answer.
Dania, I think the premise of this particular thread is tracking of those where blood was corrected to flow, but did NOT see improvements. So I think we can not say this statement so forthrightly. And yes I understand, some would have restonsed.dania wrote:So, all we really know is that as long as the blood is flowing we see improvements.
CureOrBust wrote:What concerns me more are those that are found to have CCSVI, are treated, do not re-stenose, yet do not see any improvements. Or I guess worse, is the case CeCe mentioned.
I personally think that when we can explain these cases, we will have a significantly better understanding of CCSVI and MS.
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