pk, and any others with negative results, have you been inputting your info on the original tracking thread?
...i personally think that this is one sticky we don't need if all the different kinds of patient experiences are logged in the main tracking thread.
i encourage everyone who is having less success with CCSVI treatment to do up a tracking item in that other thread, per the format provided. that way your story is there right alongside the positive experiences, and is easily comparable to others line for line.
Not sure if I understand, are you saying that at 18 months post CCSVI procedure, you were still having exacerbations, then from months 19 through to 33 you had none?Nasti wrote:From my own experience, I would recommend waiting. It took 1,5 years of exacerbations and relapses to get to more than 1 year without any!
No supplements via the dr's (baby aspirin in the long term), however, I take heaps of D and other stuff.jimmylegs wrote:curious if any of those who have had unsuccessful procedures would feel comfortable sharing whether any dietary/supplement measures have been undertaken as part of the process?
Not wishing to take any hope away, but personally I didn't notice any difference on or off it, but others have.gibbledygook wrote:I'm slightly wondering about the dabigatran/pradaxa anti coagulant. Maybe I'll feel better when I'm off that.
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