gibbledygook wrote:Alas, after my injection of beta interferon the improvements in spasticity vanished and I'm back to being much worse than I was before both angioplasties...I guess the whole venous pathology is a lot more complex than at first it seems.
Please see Tracking Thread for details:-
I have not experienced any benefits at all from the treatment, not even the warm hands and feet or fatigue improvements that so many people get. In fact, I am not sure that the stress and anxiety of the build-up and the trip itself have not accelerated my progression (personal thing - anything out of my routine seems to stress me).
Having said all that, I am still glad that I had the tests and treatment. I now know for sure that I have CCSVI plus I gave myself a "shot" at an improvement, something I would have regretted not doing.
I am not sure what to do now as I am wary of stents without "local" aftercare. I am hoping that once CCSVI becomes more accepted, future research into the condition and "progressives" like myself might find some answers regarding the Azygos and lumbar veins which seems to be where the problem might lie.
gibbledygook wrote:Wow, just read the cerebrospinal fluid entry in Wikepedia! The veins and cerebrospinal fluid are intimately linked.
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