Hello--I had the procedure done at Georgetown University 8 days ago. I had a considerable stenosis of the right IJV which was opened with balloon venoplasty. My left IJV and azygous were fine. To date I have not seen improvement in my MS symptoms.
My circulation seems better which I judge from the warmth I feel in my hands and feet in the morning. Other than that nada.
Hi Judi, in case you had brain fog/fatigue spells before, in my case of jugular balloon venoplasty I only felt a more long-term effect after 4-6 weeks on that. At 8 days also did not feel much better, had a down with headaches. And first month they still came back stimes, but then suddenly better. To see if impact remains for coming months/years.
In addition would like to add a general comment: this thread is really important to understand and learn from potential complications (and really sorry, hope can be resolved). But, besides improvements/no improvements after procedure think important not to forget the potential impact on the prevention of MS progression. This can in principle only be monitored over years...so lets monitor! And in the meantime noone should be hindered if decides for himself to have the procedure of opening closed veins, to do so. Closed veins are a fact - that people with MS have vein abnormalities in their body is a fact too. As regards proof of effects (whether preventative or immediate, as would seem rather related to more recent symptoms, or with time maybe on long-term some recovery - noone knows this yet!) it's a personal decision if one decides to wait for more research or not. I understand both point of views.
If noone would have done it though, there would have been nothing to monitor...and to discover...and no chance to improve... If you ask me now, would certainly do it again. Lets see what say in 1 year.