elliberato..you sound an accomplished wordsmith.. thank you for the post. Could I impose on you to expand your experience? This is the first time, at least for me, to read of 'continued decline'. Restenosis, return to baseline, exacerbated symptoms, yes, but decline over months is new.
I am deeply sorry to hear of this for you and pray that the answers are in flight.
thanks very much for the support and concern. Venogram revealed stenosis of both jugular veins as well a malformed valve in the azygos. The areas were all ballooned. No stenting per my request. There is part occlusion but not complete. As you know veins are very elastic and ultrasound this week revealed slighted reflux but still descent flow. Three days after procedure I endured a nasty bladder infection, something I have never had in my life, be it from the catheter or the hospital or the warfarin who knows. Two weeks later I was infusing a three day solumedrol, again first time ever. Since my legs have continued to decline and walking and standing have become difficult. Of course i had high expectations and it was a real blow to not experience any gains. Hopefully this procedure will be perfected sooner than later since I have progressed to spms from rrms. I do understand that I was a pioneer and at this point I realize I should not expect much but I was at least going to hold progression at bay. I recall having a great deal of pressure in my ears for about a month but is subsided. I have always had warm extremities so there was no change. I am very happy for people who are getting improvements, I am just not one...I think part of the reason you arent hearing about this is because the guy who says anything negative gets his the group jumping down his throat telling him how he restenosed or how his Dr missed something. This is why the results are so skewed. I still feel there is much merit to the theory, but just a lot to learn. Especially when we get a few curve balls that show healthy people with twisted veins. Oh my zods!
kudos to the wheelchair kamikaze who found a video that sums it all up!!!
for your viewing pleasure http://www.youtube.com/watch?v=G7P4iFg0 ... r_embedded