Around the 15th of December my left leg went numb. Then had some pain in my right shoulder blade. Thought I had pinched nerve. Went to the chiro and had 2 adjustments. The evening of my 2nd treatment, left leg still numb, went to bed that night and I couldn't lift my right leg to get my pants off. So that was a Thursday, made it thru the weekend, well struggled!! No use of my right leg. Went to work on Monday, Dec. 21 and had had enough. Went to my general doctor, and he immediately sent me to the hospital for an MRI. Well, they admitted me. Monday and Tuesday had MRI's, on Wednesday morning they gave me a lumbar puncture. Wednesday night the Neuro came in and told me that I had MS. Well, then he said, a form of MS. Called it both TM and Clinically Isolated Synrome. Said my T1 was affected. Thursday morning the RN came in and gave me a shot of Copaxone. Said I will have to give myself this shot everday. That afternoon, Xmas Eve I was sent home. DONE.
Was down all Xmas weekend with a spinal headache from the lumbar puncture. IT SUCKED!!!
Well, so since I have been home I have been giving myself a shot everyday. Numbness is from below my breasts down, left side the worse. Left side very sensitve. Almost feels like I am being shocked.
So last week I went o UNMC MS Research Center. Saw the Dr. she read my MRI from here and said they weren't clear enough for her to diagonse me with MS. But for sure TM. She put me on Steroids, last week on Wed morning I took 25 pills, Friday morning took 25 pills and Sunday took the last 25. Taking 25 pills at a time SUCKS!!! So it has been a few days since I have been done with the pills and today I am not feeling too good. My legs are very weak, very wobbly and my numbness seems to be a bit worse. Not horrible, but for sure there.
I am very frustrated, and just want to know what is going on. I have go back to UNMC in March for a full work up of MRI's I guess to make a more clear diagnosis.
I have not worked since 21DEC. I have a 5yr old son and a 5 month old son!!! I really am going nuts staying home all day, but I want to make sure I am doing the right thing. I need my health!! And financially I have to, daycare is expensive!!!
I just want to know what is going on with me!!! I hate that I have to wait till March to find out! It's really driving me crazy. I just want to feel better, my legs are for sure not 100% very weak, feel like jello!! Makes me nervous carrying my son! The numbness is driving me crazy, I guess it all is!!! I just want answers, and am growing very impatient!!!
Since this above statement, it is now June 2010, and here are the new developments. One of my last MRI's showed that I had an enlarge Thyroid. Well one week ago I had Thyroid surgery and they removed a nodule on my left side the size of a softball. No cancer. The right side they said is also enlarged but not causing any problems I guess so they left it there. I am a bit amazed at some of the things I am reading.
When I was initially told my thyroid was enlarged I asked if any of this would be related, from the Neuro and also the ENT doctor they immediately responded NO!!!
Is there any hope out there for me? I am growing very impatient and very frustrated!!!
Thank you for whoever responds to this!!!