This Is MS Multiple Sclerosis Community: Knowledge & Support

Has anyone heard of this? A neurologist I met, one that actually supports the theory of CCSVI, said that she had seen great results with this chamber of high pressured oxygen, has anyone else had any experience with this? Is it something worth fighting for?

These are some links

http://www.msntc.org.uk/oxygen_treatment.htm

http://www.msrc.co.uk/index.cfm?fuseact ... ageid=2303

I have wondered too about the role of oxygenation chambers, sleep-apnea oxygen generators, that sort of thing. That the brain is deoxygenated seems like a given, so it should help. It wouldn't do a thing about the leakage of red blood cells into the brain, so that'll still be there doing damage, so it's not a solution but it should be healthy for the deoxygenation side of things.

There have been studies looking at high-pressure oxygen chambers and MS that did not find any benefit from using them. But in light of ccsvi maybe that needs revisiting.

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

http://www2.cochrane.org/reviews/en/ab003057.html

notice the bias in the review.....

THere were studies that showed benefit but the reviewer didn't think the venous hypothesis made sense.....

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i had tried to get that treatment. i was told by the hospital that to get treated it had to be for an illness that it was approved for like wound healing etc. ms was not one of them. they would not let me get it even if i self paid. so i found an alternative health place that had a portable chamber. i did two treatments but i had to quit because it was too difficult to get in and out because of how bad my ms is. i don't feel the portable ones may be quite as effective but i will say that even with the beating my poor old body went through getting in and out--i did feel better and had more stamina after each treatment. it is pricey. i really do think it may help. but heck, it's a drug free treatment that does help people so is it any wonder it is so hard to get. GOOGLE the things it is helping. pretty interesting. put it this way, if i was a cazillionair i'd have one of those. there are private facilities in the usa where you can get treated in hospital type chambers that you self pay (pricey) but unfortunatly none near me. it would make sence to me to be treated with oxygen chambers even after ccsvi treatment. unless maybe the high pressure would have a negative effect on stents. that's a dr. question. they also help with lymes disease, viruses and a lot of things. oh, god bless the good old fda they really aren't influenced a bit. oh, yeah there is a drug to help fatigue with a cazillion side effects but something that can actually help and no side effects they better not approve it. yipes, we might actually feel better and not have to take more drugs to treat the damage done by the other drugs. i would say that if there is a facility near you and you can afford it -try it. i know from the little taste of it i got i would be doing it if i could.

I am really grateful for your feedback, especially to you blossom, because I needed to hear from people who have had experience with it. I live in Europe, Macedonia, and actually there is one such chamber in whole country, and it is placed in the state hospital, used in the plastic surgeries, for skin repair etc. In order to get in there for MS, one may need money (I am not sure), but most definitely one needs a lot of connections... that's why I was asking if it was worth fighting for
This neurologist I was talking about was generally aiming at using the chamber for relieving iron from the brain. Maybe if the red blood sells are the ones carrying a lot of iron (hemoglobin), this should be done in combination with phlebotomy (lowering iron by donating blood or just simple bloodletting). I am kind of searching for alternatives, I had the CCSVI, I have a 6 cm stent in my neck, but no noticeable effect of the surgery. I am still not ready to admit that CCSVI didn't work for me, I went through a lot of trouble for that..

The doctor also mentioned stem cells treatment for repairing the veins, i.e. taking auto stem cells form under the arm or a tooth and injecting them in the blood, as they run through it, they stick to the places where the veins are damaged and thus specializing to be vein cells. So a three part therapy: CCSVI, stemcells and barochamber... This review that mrhodes40 mentions really doesn't include the veins, but I don't believe that it can be so inefficient, people report otherwise.

An MS friend of mine down in Kent UK the MS society has a chamber in their she has used it for when she run's the marathon

I will be seeing her at the next ball 3rd july I shall enquire more.

How funny at this ball she has put me on a table with Neuro's ......

I can let them all know about my planned trip to Essential Health Clinic 9th July CCSVI screening

Silver

Thanx, good luck with the neuros )) and wish you all the best with CCSVI as well..

I had treatment in hyperbaria chamber everyday for 6 weeks twice because of bone necrosis caused by radiation to cure tongue cancer. They warned me it might cause fatigue. It was not a piece of cake, count the preparation time, going down (presure wise) and up takes about 3hrs. It was about 1h30 min drive from home.
Guess what, I never had so much energy since I had ms. I felt great. But it did not last more than one month. Now that I have been liberated maybe the outcome would be different!?!? But I will not be the guinea pig for that one!

If I had a procedure, and it didn't make a difference, i would be "searching" very HARD for someone to perform the 5 Zamboni Doppler tests (ie non-invasive and prescribed by the guy that formed the theory). These test should show if the blood is flowing correctly within the veins, or if there is something still clearly wrong. I don't remember the details, but there was a comment in one of Zamboni's papers that there was a vein abnormality that couldn't be treated. Maybe this is your problem.

The fact that you have had the procedure already, I wouldn't accept any less than someone who was trained by Mangetti herself! to perform the doppler. Hey, maybe Zamboni's team may even be interested in your case

nasti, would you mind telling what type of ms you have and for how long and where and when the procedure was done? if you haven't had any improvements is it too soon to tell if it at least stopped progression. just curious. i think i had read that someone getting the treatment wondered if the airplane ride home might have caused the vein to restenose. but who knows. but with a stent it won't restenose. have you been able to have a follow up? i'd be curious to see what a dr. would think about the effect if any. there is pressure makes your ears pop but once that adjust there was nothing to it actually it was relaxing. there is a lot info.on the internet where you can get more of an idea. a friend of mine had gotten stem cells and i think the dr. told her no hyperbaric chamber but i want to double check with her on that. to me oxygen is healing and so is the right blood flow and stem cells repair so it seems we both have the same idea going on. i haven't gotten treated yet but i was trying to get a game plan together in case i need to. that is interesting stuff about the veins. if you do decide and get the chamber treatment i hope you let us know the results which from what i understand could take a little while. hopefully it would help the iron oberload and you will improve. best to you.

nasti, i know this should be a new thread but the vein repair with stem cells is interesting. i don't know how to pull up and post articles but in my read on adult stem cells there was a case where a woman was ready to have her legs amputated because of bad circulation and as the last resort they injected stem cells and it not only saved her legs but she was able to dance. wouldn't it be great to just cut out a lot of this beurocratic bs and these great dr.'s that are smart enough to think out of the box get their minds together. of course there has to be some rules. don't want any frankensteins but you know what i mean.

My CCSVI was done by Grozdinski and Petrov in Bulgaria. These doctors obviously know what they are doing, I had 1 procedure in my home town, but though the doctors were enthusiastic and willing to help, they lack the experience.. I have had MS for 10 years, I am 27 now, I had my first relapse when I was 17 and some symptoms before that. It is RRMS, I have no remaining symptoms other than fatigue, which is relieved by LDN, but I have much more disease activity since I gave birth 2 years ago. When I had the procedure I was having a relapse (bad balance, weak right side of the body and no taste in my mouth). The night before, Dr. Petrov came to me and mentioned that Zamboni has allegedly claimed that it is best to have relapse to see results right away, but that didn't happen for me.. I remained the same, the relapse is now almost over, I am able to function normally, but nothing besides that. That is what normally happens with relapses. I have no restenosis, I take anticoagulants, LDN, vitamins... I was disappointed I didn't feel better right after the procedure, but I think that I had to do it to know. I read the no success stories after, I guess it is people's nature to read only what they want to hear There is a thread here, a post by Dr. Simka saying that most of the patients still have relapses and bad and good days after the procedure, so most probably, as he says, it is CCSVI + something else.
BTW, if anyone has fatigue problems, I would recommend LDN, it helped me immensely, I had literally no life before it.
Maybe the Zamboni 5 Doppler test idea is not bad, but I don't think i have the strength to deal with it now. I have put my life on hold these last 2-3 months because of the procedures and relapses, I am finally feeling almost normal, I want to rest a bit. However, I am exploring my options for the future.
About the stem cells, it is just something that this doctor mentioned, I don't think they have started doing it, I think she is just exploring the available options. It is a good thing to do, she is young and working at a cardiosurgery hospital, I hope I can hear more good news from her.
The chamber option, I don't know, maybe when I have another relapse and be desperate enough, since I believe that's how human psychology works. I would write definitely, and share, that's what I have done so far, I don't intend to stop.
I don't mind being the guinea pig, I was for the first procedure on my insisting, but things develop pretty slowly here...

nasti, thank you for shareing your story.

look what I found about these stem cells

http://www.medra.com/multiplesclerosis1 ... gwodWHG7Qg[/url]