My CCSVI was done by Grozdinski and Petrov in Bulgaria. These doctors obviously know what they are doing, I had 1 procedure in my home town, but though the doctors were enthusiastic and willing to help, they lack the experience.. I have had MS for 10 years, I am 27 now, I had my first relapse when I was 17 and some symptoms before that. It is RRMS, I have no remaining symptoms other than fatigue, which is relieved by LDN, but I have much more disease activity since I gave birth 2 years ago. When I had the procedure I was having a relapse (bad balance, weak right side of the body and no taste in my mouth). The night before, Dr. Petrov came to me and mentioned that Zamboni has allegedly claimed that it is best to have relapse to see results right away, but that didn't happen for me.. I remained the same, the relapse is now almost over, I am able to function normally, but nothing besides that. That is what normally happens with relapses. I have no restenosis, I take anticoagulants, LDN, vitamins... I was disappointed I didn't feel better right after the procedure, but I think that I had to do it to know. I read the no success stories after, I guess it is people's nature to read only what they want to hear
There is a thread here, a post by Dr. Simka saying that most of the patients still have relapses and bad and good days after the procedure, so most probably, as he says, it is CCSVI + something else.
BTW, if anyone has fatigue problems, I would recommend LDN, it helped me immensely, I had literally no life before it.
Maybe the Zamboni 5 Doppler test idea is not bad, but I don't think i have the strength to deal with it now. I have put my life on hold these last 2-3 months because of the procedures and relapses, I am finally feeling almost normal, I want to rest a bit. However, I am exploring my options for the future.
About the stem cells, it is just something that this doctor mentioned, I don't think they have started doing it, I think she is just exploring the available options. It is a good thing to do, she is young and working at a cardiosurgery hospital, I hope I can hear more good news from her.
The chamber option, I don't know, maybe when I have another relapse and be desperate enough, since I believe that's how human psychology works.
I would write definitely, and share, that's what I have done so far, I don't intend to stop.
I don't mind being the guinea pig, I was for the first procedure on my insisting, but things develop pretty slowly here...