CCSVI AND MS - TIP OF ICEBERG????

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

CCSVI AND MS - TIP OF ICEBERG????

Postby Gordon » Thu Jun 24, 2010 5:23 pm

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Postby blossom » Thu Jun 24, 2010 6:25 pm

YEP, i feel it is only the tip of the iceberg. this is the wrong thread to say this but look at the ones with these diseases like parkinsons, ms, atzimers etc. that improved after ctos surgery. perhaps that surgery gets the pressure off the veins not only the arteries. i feel the iceberg is starting to melt and the whoever whatever ones that have a lot to loose know this and that is one of the biggest reasons for the kind of resistance about ccsvi.
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Postby Cece » Thu Jun 24, 2010 7:23 pm

This is actually used against ccsvi in the argument that other neurological diseases show an increase of iron in the brain as well.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby blossom » Thu Jun 24, 2010 9:51 pm

cece, in no way am i trying to discredit ccsvi. it seems to me that there are a lot of things that the whoevers are trying to use to discredit ccsvi. but opening the veins is helping people with ms for sure. so that in itself should have enough merit to let us get tested and treated. when i got tested for heavy metals i was very high in aluminum, cadium, lead etc. why there are no deposits of these metals in our brains or maybe there is i don't know. but all of these metals are very bad especially on the nervous system. so, maybe some people have the type of blood in the first place that is thicker or a genetic make up that when the blood doesn't flow properly these metals deposit differently causeing a bunch of problems. individually different. just like smokeing is very bad we all know that. yet, some can smoke 2 pks. a day and not get lung cancer yet people that never smoked get it. is it the genetics? who knows for sure. for sure opening the veins is helping a lot of people with ms and they still would have to have the iron deposits. by opening the veins getting better flow you would think that would keep the deposits from getting worse and hopeully help get rid of the some of the iron. everyone knows there is a lot to be learned from this. my point is that whether you got bad blood flow to the heart or legs or kidney or liver or brain it is not good. and i feel the more that they learn about ccsvi the circulation is going to come into play with treatments for a lot of different illnesses that they are useing just drugs to treat them with at this time. vascular dr.'s may be looking at the pancreas some day and find that it isn't working properly because of a blood flow thing then no more diabetes. who knows. how will they know if they never try it. look how long ago the circulation and ms were associated but until a doctor actually got to start opening up veins we'd all still be banging our heads against the wall. so, i think the plumbers are gonna have a lot to do with getting this crap moving out of our bodies no matter what some of the diseases are called. when my toilet is full i flush it and if the plumbing isn't working right it will overflow and make a mess. why would our bodies be any different. that's what i meant about it being the tip of the iceberg.
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Postby Cece » Thu Jun 24, 2010 10:16 pm

no, I agree...what I meant was that the link was about iron in the brain in other neurological disorders, if I remember right, and I keep hearing in the arguments against ccsvi that other neurological disorders have iron build-up too so it's not special to MS or it's ok or something and I disagree with those arguments. There is iron in the brain in those disorders, sure, and if that iron follows the veins like how Haacke's research has shown, then I think there might be a vascular origin for those disorders too.

I grew up on heavy well water, I remember not liking it, now I wonder what was in that stuff?

I completely agree, our brains are springing leaks onto delicate brain tissue, and it's not just iron cells but whatever crap that goes into the body that's getting past the blood brain barrier that would normally keep it out. I was really responding to the post before yours, not yours, blossom! :)
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
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Postby blossom » Fri Jun 25, 2010 6:38 pm

cece, i think we're on the same page here. a different site of just talking about our lifestyles growing up etc. would be interesting. but my poor little ms fingers couldn't handle that right now. counting on ccsvi treatment to remedy that.
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Postby shye » Sat Jun 26, 2010 8:51 am

It is well wirth getting an iron panel done (this is a test not done routinely)--that way you will know if your iron, and ferritin levels are high. If so, can donate blood (I have recently donated blood for the first time, and am amazed at the difference in energy, and brain fog clearance that this brought about). i am now getting my blood monitored frequently, and will donate blood as frequently as allowed.
Whatever is causing iron to deposit in the brain, for MS, PD or Alzheimer's, it is a fact that it is depositing. So if you can get rid of excess ferritin, you will in all probability be depositing less.
Well worth the very slight inconvenience of donating a pint of blood periodically.
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Postby blossom » Sat Jun 26, 2010 6:30 pm

shye, i had an iron test done by my pcp. he said it was normal. i called the iron inst. they said it was a little high but not bad.
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Postby Drury » Mon Jun 28, 2010 9:14 pm

I am right in thinking that people with MS cannot give blood?

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Postby Bethr » Mon Jun 28, 2010 11:49 pm

In some countries, that is true.
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Postby Drury » Tue Jun 29, 2010 7:09 am

Just curious is it true in US?
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Postby walcat » Tue Jun 29, 2010 5:17 pm

I was told here in the States, that I can't give blood. Their reason is because of the drugs I've taken in the past, even though I'm no longer on any drugs.
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Postby Drury » Tue Jun 29, 2010 6:29 pm

OK. That makes sense but too bad.

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