When I was diagnosed with CCSVI, I was very worried that I might also have MS. As you might remember I have Transverse Myelitis not MS.
So I phoned up the three hospitals where I have had my MRI scans in the past. To my surprise they all kept copies of my scans in their computers. I was told that they have to keep a copy, that is in the UK. You might have a chance to get copies if that is the case in France as well.
Every hospital sent me a CD with my MRIs and another one was kind enough to send me the actual X-ray sheets. I recently passed these scans to other neurologists, with the note that I also have CCSVI. They all agreed with my previous diagnosis, TM and not MS.
i have cntacted the hospital (Uk) where all the tests were, but they said as it was 8 years ago, the files aren't there.
I google'd Transverse Myelitis, and this sounds Alot more likely than me having MS.
Only my lower body is affected = legs strength, balance, stiffness (when first standing only), and weight loss.
I have no problems with my upper body, which most MS patients do.
How long have you had TM?
How do you treat it?
Does it improve your mobility?
Maybe you are not interested, but just in case the Thoracic Outlet Syndrome can compress veins.
i google'd this, and i dont have any of the symptoms
i dont have neck/arm pain
just demylination symptoms
did your dr go in from the left femoral, or not?
No, i did tell her if she could, but she said she can reach any vein from the right side.
And looking at my CD - photos, she did