TMrox wrote:When I was diagnosed with CCSVI, I was very worried that I might also have MS. As you might remember I have Transverse Myelitis not MS.
So I phoned up the three hospitals where I have had my MRI scans in the past. To my surprise they all kept copies of my scans in their computers. I was told that they have to keep a copy, that is in the UK. You might have a chance to get copies if that is the case in France as well.
Every hospital sent me a CD with my MRIs and another one was kind enough to send me the actual X-ray sheets. I recently passed these scans to other neurologists, with the note that I also have CCSVI. They all agreed with my previous diagnosis, TM and not MS.
frodo wrote:Maybe you are not interested, but just in case the Thoracic Outlet Syndrome can compress veins.
did your dr go in from the left femoral, or not?
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