This Is MS Multiple Sclerosis Community: Knowledge & Support

Breaking news! Is it true?

I have not heard this but my gosh I hope its true!!!! I know where I will be going next week:)

Someone on the facebook group posted a link to this: http://www.redattoresociale.it/Dettagli ... ews=312625

which translates to: CCSVI is recognized as a disease. No elaboration on what that really means, though.

Alba has just posted again saying it's true. Pino C made it happen. Anyone
can you help?

Google Italian to English translation

The cerebrospinal chronic venous insufficiency, "is recognized as a disease"

The Association CCSVI in multiple sclerosis - Onlus "asks guidelines for diagnosis and therapy. Tobacco: "The State shall take responsibility to implement what the scientific community in the world has crossed"

ROME - The cerebrospinal chronic venous insufficiency (CCSVI) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis. This is called the association "CCSVI in multiple sclerosis - Onlus" the Ministry of Health in a just concluded meeting between representatives of the association and Albert Zangrilli, president of the second section to the Board of Health in the same ministry. "While science makes its way to validate the correlation between MS and CCSVI - Tobacco said - as, we ask that, since the Ccsvi has already been validated by the scientific world as it has been validated his therapy, the state will face load to implement what the scientific community worldwide has already validated and to draw up guidelines with respect to this disease occur until the science correlation.

Found in several trials around the world in people with multiple sclerosis, CCSVI is a disease that affects the cervical and thoracic veins that because dell'inspessimento anomalous venous walls, remove inefficient blood from the central nervous system. The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year. "Today's meeting went very well - added Tobacco - The Ministry has taken note of our request." The timing, however, there are still some news. "On this we had no indications, but the ministry made us know that it will mobilize more quickly." (Ga)

http://www.redattoresociale.it/Dettagli ... ews=312625

Great news. Doctors are obliged to treat disease..

According to Cheer on the Facebook site, "so, here's the scoop--Pino Cucci, an MS patient, spoke today before a medical board in Rome, and it appears the ministry of health is promising to move quickly..."

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

BIG Thank You "CCSVI Australia" for translation!!!

ROME - The cerebrospinal chronic venous insufficiency (CCSVI) is recognized in Italy as a disease in itself that can be quickly drawn up guidelines to be able to diagnose and treat beyond its correlation with multiple sclerosis. This is called the association "CCSVI in multiple sclerosis - Onlus" the Ministry of Health in a just concluded meeting between representatives of the association and Albert Zangrilli, president of the second section to the Board of Health in the same ministry. "While science makes its way to validate the correlation between MS and CCSVI - Tobacco said - as, we ask that, since the Ccsvi has already been validated by the scientific world as it has been validated his therapy, the state will face load to implement what the scientific community worldwide has already validated and to draw up guidelines with respect to this disease occur until the science correlation.

Found in several trials around the world in people with multiple sclerosis, CCSVI is a disease that affects the cervical and thoracic veins that because dell'inspessimento anomalous venous walls, remove inefficient blood from the central nervous system. The correlation between the two diseases in Italy is a study whose results, explain the association, are expected at the end of next year. "Today's meeting went very well - added Tobacco - The Ministry has taken note of our request." The timing, however, there are still some news. "On this we had no indications, but the ministry made us know that it will mobilize more quickly." (Ga)

Source English translation: http://www.facebook.com/pages/CCSVI-AUS ... 3307140799

Amazing.

Which study are they talking about? size? blinding? who? Design? etc etc

I believe what happened today in Rome was that CCSVI was recognized as a STAND ALONE vascular condition by the ministry of health, and that Dr. Zamboni was given permission to undertake his blinded study of CCSVI in MS. What is exciting about this is that patients who exhibit signs of CCSVI can eventually be treated for this disease whether or not they have MS- once the ministry establishes guidelines.

Here is another lousy google translate of another article...(I've been trying all day to get the word from the Italian site, and no luck)



http://www.redattoresociale.it/Dettagli ... ews=312625

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Italy has shown the way ...

Thanks Italy, Kuwait ...

Great news!
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

who is alba ?

Has this been confirmed ?



Mr. Success

YES!!!! This is SO encouraging.