This Is MS Multiple Sclerosis Community: Knowledge & Support

I'm just wondering for those that have under gone the procedure, who has had a follow up exam? Where did you go? Cost?

Hi!
I had my follow up in Poland (77 days after) and another follow up couple of days ago in Slovakia - CT (320 layers) - both jugulars and my stent were very good visible. I do not pay in Slovakia because my health insurance company pays for it.
I plan to have my 1 year follow up in Poland as well in October/November.

The doctors in Slovakia want to see me again later this year.
Erika

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Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse

Hi. I had my 6 week follow up after the procedure. MRI/MSV and all was fine then. Showed big differences pre Stent and Post Stent. That was DEC 2009.
I am excited to have my year follow up in Oct 2010.
I am doing very well. I hope this was your question?
Rose

Where did you get your follow up exam?

Going for my one year in July. 8 week and 6 month at Haacke's all were 'clear and flowing well', but I also have stents.

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http://myhopefuljourneyintoactualmsreco ... ogspot.com

Had a follow-up Doppler last Monday 10 weeks after procedure - locally. Done by very competent IR who 'dopplers' jugular and other veins "all the time" (for dialysis and cancer patients). Could see stent clearly in place but now narrowed again!! Now becoming apparent to many, I think, that this is only the beginning of your journey to liberation - so be prepared, even if you have a stent!! Looks as if we have to go in again and sort it out. Still I'm optimistic...

Pauline, thanks for your good info. What meds are you taking for blood thinners? Plavix, aspirin, or anything? thanks, Rose

How has it physically changed you, any improvements?

Hi Rose. I'm only taking aspirin now. I took Areplex injections for 7 days, Plavix for 8 weeks together with omeprazole ( an drug which they advise in case of stomach irritation - usually used for treating acid-induced inflammation and ulcers of the stomach) and 100mg aspirin daily - lifelong and all of these from the time of the procedure. Also when I asked Dr. Simka about blood clotting tests and how long to take Plavix, he told me that there was "no need for PT blood tests as neither clopidogrel nor aspirin change the results of routine blood clotting tests; such tests are needed in the patients on warfarin and similar drugs and 8 weeks of clopidogrel (Areplex) is enough - longer recommendations are routine in the patients with underlying vascular pathology (arteriosclerosis, for example) - not your case" .

Hope this helps..
Pauline

I had my liberation procedure abroad.

On my return to the UK I showed my GP the letter from the vascular surgeon who treated me. The letter requested an urgent color doppler ultrasound a month after the angioplasty and a venography six months afterwards.

My GP immediately referred me to a private hospital. No fuss whatsoever. I had the scan by an experienced radiologist. I paid around £200. The test was normal, no restenosis.

I will have the venography in three months time. For that I will see the vascular doctor who treated me for CCSVI. I trust him 100%