Fund Raising for CCSVI Treatment Research

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Fund Raising for CCSVI Treatment Research

Postby Direct-MS » Sat Jun 26, 2010 7:42 pm

Given the fact that both NMSS and the MS Society of Canada have chosen to fund only CCSVI/MS association research, it is essential that the MS community fund the research that is actually needed - clinical trials which test the effectiveness of the Liberation Treatment.
This can be done in two ways. Either by funding charities such as Direct-MS which are committed to funding such treatment research or by funding the researchers directly. Such research will cost between 1 and 10 million dollars depending on the size of the project.
Direct-MS can provide tax receipts for both Canadian and American donors and is basically flow-through in that 98% of funds raised will go to research projects in both Canada and USA.
We encourage everyone who sees that CCSVI is a key part of MS to donate what they can. Any amount will help the cause. This is the only way we are ever going to get the much needed critical research on the effectiveness of the Liberation Treatment.
The researchers at the University of Buffalo will soon be starting a clinical trial which will test the Libertation Treatment and this is one project that that needs our moral and financial support. We are hopeful similar trials will be started within the next few months.
These studies will provide the critical data which will demonstrate the need for widespread testing and treatment of CCSVI. By supporting these studies, the MS community will be sending a strong message to the MS societies that they no longer have our support regarding research.
If you wish to donate to CCSVI research through Direct-MS, you can either do it online through our website (www,direct-ms.org) and by sending a cheque to the address on the website.
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Postby PCakes » Sat Jun 26, 2010 8:06 pm

Thank you for this.. how will the funds donated be distributed?..am i correct in my understanding that the only treatment trials approved , to date, are in the United States? and if so.. once complete do you think that Health Canada will respect these results or will they hold to their need to flog the equine?
..and thank you for all that you do...pCakes
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Postby Direct-MS » Sun Jun 27, 2010 3:55 pm

Once a reasonable amount of money has been raised, we will invite researchers who are planning on, or doing, research on the effectiveness of the Liberation Treatment to apply for funding. The scientific committee of Direct-MS (all affected by MS) will decide on the distribution of funding. This is the method we have used in the past to fund various nutrition related studies and the the U of Buffalo CCSVI/MS association study.

If the MS community decides it is not interested in funding such research and to just keep feeding the do-little MS societies, then I doubt such research will be done for a long time and testing and treatment will not be widely available.

It doesn't matter if the research is done in the USA or Canada, as long as it is done in a rigorous manner.
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