This Is MS Multiple Sclerosis Community: Knowledge & Support

I went to poland under the impression that I had a simple membrane blockage that could be fixed by angio alone. With venography they found a serious stenosis on the opposite side that reclosed 2 times after ballooning. On the table they asked me to decide about the stent. I said we needed to get my gp wife who was waiting in the next room and ask her... They wouldn't ask,(I think they know she was against them) and really I think my flow only increased by 10 or 20% without a stent. Things closed back up right away.

Now I think about it every time I walk down the street like a drunk and people stare. Should I have gone for it? If I have another ms attack Im going back for the stent.

Re: this, and Bill (i'm sorry to hear you're stuck in the status quo after that). Yes this is the exact predicament. I guess my feeling is that if this alone doesn't work then i've tried it, and will have to watch and wait to see if they improve or change the stents themselves and see how people do. See if my confidence in them improves. It may cost another loan to go back but when it comes to playing risk with what health you have, money seems to lose importance.





Absolutely, and I feel it's wise to read everything from all sides and not be blindly drawn on the positives. People's opinions here do matter too, especially those that have experienced the procedure and those who still have questions.

Is it possible to talk to Dr Simka beforehand? Or do you mean when over there but before the op?

Ultimately I still haven't made my mind up as often every new piece of information sways my mind another way. Like many I suppose i'm trying to make the wisest judgement call and am not quite there at this moment.

Thank you all x

Interrupted: Dr Siskin is the doctor that I will be seeing in August. He is very approachable either by email or phone and I feel quite confident in his judgment as to whether a stent is required or not. Reseaching the various forums will probably leave you frustrated because I'm not sure if there is a definitive answer..it's a personal choice. I still believe if you could talk to the doctor beforehand and explain your feelings and hear his/hers, you might
find it helpful. Doctors are not all on the same page when it comes to stents.
Good luck with your treatment.
Billmiek: Sorry to hear that you haven't had a positive experience so far.
It seems alot of people need 2 treatments for a successful result. Don't give up. Hopefully, you can have the next treatment done closer to home.

I had angio (no stents) in March in Poland and I had some great improvements (my spastisity disappeared, I had strength to walk unaided in the morning and in the evening, my bad sensations in the hands at night disappeared, my head tensions disappeared and I began to tolerate heat) but the spactisity and the ability to walk unaided more (I use a walker the rest of the time) went away about 2 weeks later. I knew I had restenosed. In mid May I had another angio (no stents) by DR Siskin and I felt better on the following day and then about 4 days later for a day but far not like after the procedure in Poland. A few days after the procedure I told the doctor my veins may have restenosed and asked him if he can check them via doppler. He said that would not tell him anything and that I have to go for venography but if they have restenosed again, he said, it would be too risky to put stents in since they may restenose with the stents in and then they'll be out of options. In my case he draw a conclusion knowing my past experience with ballooning. And, please correct me if I am mistaken but wasn't Dr Dake placing stents in veins without having performed angio once or twice before so he would know how prompt to re-stenose the veins are? BTW, Dr Siskin said he already has a patient whose vein restenosed with the stent in.

another consideration is the diameter of the stent. They are using 12mm in poland these days..that won't migrate but is almost twice the size of the vein..and whether its over a valve. Mine was.

Is that really possible?? I hadn't heard of this

Can you expand on what you mean hear Bill? I'm mid relapse, foggy and being thick with regards the valve thing and what size of stent is actually preferable and why

Going to bump this, sorry, but i'm befuddled to know the facts about this re-stenosing with stents in. Can anyone enlighten me on the mechanics, danger factor, and any case stories of this?

Here Interrupted, let me bump this again for you.

Here's what I would like to know: How many have had balloon angio only (no stents) and seeing sustained improvements? My jugulars were ballooned and improvements only lasted a few days. I sure wish they had used stents.

Pam

Very good question, I think people are crying out for some stats on those already liberated.

I'm very sorry yours didn't last. Out of curiosity, did you feel any benefit in those two weeks?

Dr. Simka wrote (on another blog) a well-reasoned defense of stents.

Every procedure and device (including stents) has risk.

So does doing nothing.

So does just ballooning.

You just need the complete information to determine which risk is greater.

I VOTE WITH RHONDA'S ANALYSIS ABOVE.

Hi,
I was treated by Dr. Siskin 3 weeks ago (angioplasty only). I first asked him for clarification on his use of stents. His explanation to me made perfect sense. Dr. Siskin will only stent if after ballooning, the vein is WORSE than it was BEFORE ballooning.
Hope this helps.
Pam

I had my procedure exactly one week ago and was happy to see improvements. By last Thursday nearly all positive effects had vanished.

Just to clarify this thread, JoyIsMyStrength, did you have any stents placed?

If I recall correctly, about one-half of Zamboni's balloon only treatments restenosed, so that (stent or not) is a crucial item of information to include here.

Improvements followed by return of symptoms is expected in about half of the Zamboni testing group. That is not a reason for despair, just a situation where stenting needs to be considered (and its risks) versus the probability (near one-half) of restenosis and disease progression.

No, as I stated previously:



No stents. At all.