do a google search for a blog by Tisa, I think that's her name
Or go look for it on the Facebook site. She's pretty open about sharing this info. It does sound like her doctor is getting slammed with ccsvi patients. I believe it is the female doctor and not the others on staff that is doing ccsvi treatment.
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition