I received a diagnosis of "most likely MS" after two bouts of Optic Neuritis last year. I went as far as getting a venogram to check for CCSVI, but when the IR found no stenosis, I began to question the initial diagnosis. I went to the National Institutes of Health to find out what was "really" going on. After 3 visits to MD, I received the "you have MS" diagnosis.
Several months ago, my older sister staring having some pretty serious neurological impairments. On her quest for answers, she went to an Infectious Disease doc who after reviewing her records, advised her she had Lyme in her brain, and started her on the IV.
Needless to say, it made me question my "confirmed" diagnosis. I started on doxy almost 2 months ago and haven't looked back. And while I don't know for certain that this is Lyme, I do know whatever I have has been impacted by my current regimen.
I finally have my appt with a LLMD this week, and I wish I would have listened to those who urged me to go to one last year. I didn't comprehend how indistinguishable the two conditions can be, and I imagine there are many others who are in the same boat. I knew I was getting worse, and the CRAB's weren't working... I could feel it. I hope others out there will take heed. I was convinced I had MS. I had been given that diagnosis by a number of doctors, some the best in their field. And I can say now unequivocally; this is not MS.
RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12
Late Stage Lyme - 12/10
Too many meds to list!!
Remember, today is the tomorrow you worried about yesterday..