I too am interested in your query, tho' I'm afraid I can't directly help.
I was diagnosed, following a doppler scan, with a flapping valve, just kind of quivering, in my left jug, causing reflux, but no apparent narrowing or stenosis. I appreciate that venography may reveal more, but I too am keen to hear of any similar stories and what may be done! There must be more out there with flappy valve issues?!...
I have emailed a Vascular surgeon in the UK and Dr Simka for feedback.
My current symptoms, post-relapse, are visual, sensory and fatigue.