Well, i got to say well done!!!
Only yesterday i visited a lady neuro only to get some paperwork needed for my insurance carrier. While i was waiting in the lobby i felt the need to start a CCSVI conversation with some patients. It was kind of fun, cause half of them were looking at me like they were looking at a Salvador Dali's painting while the other half were like "WTF r u talking about man? Just leave us in peace". I was so bored to tell them that i have already done the treatment... i had to play dam at the time. No energy and all...
But it was discouraging i must say. I mean this "yes doctor" attitude is what made neuros so comfortable all these years and this is why the status kuo is so freaking solid.
So, when i went in, i spoke with the doctor about all these. I wouldn't but she asked me which doctor is following me. When i told her that there is nothing a neuro can do for me she gave me the alien look and started asking questions. She had "HEARD of Campath and CCSVI but..." When i told her some facts she was open for discussion and she wanted me to meet up with the head of the hospital's neurology clinic for some reason.
Finally, she prescribed a couple of MRIs for me, some other tests i wanted to have (Lyme etc) and all in all she was very supporting. She even admitted that they can do nothing for us at this point. Keep in mind that she works on salary and she doesn't practice in private
If all these were to take place in a private office i would get a good ass spanking without any doubt.
What i got left with after this visit is the fact that a great percentage of MS patients are bored to "google" CCSVI leaving the rest of us to fight with the monsters.
It is not a matter of spreading the word. The word is out there for everyone to see. The problem comes within the patients cohort. We must all change our attitude towards neurologists.
IF CCSVI IS NOT THE CURE THEN THEY SHOULD GET THE FUCK OFF OF THEIR CHAIRS AND FIND ONE.