The next Buffalo study commences this week
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- Family Elder
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These AM Buffalo News segments belong on this thread and describe what has been going on with this study so far...
Segment 1:
http://www.wkbw.com/programming/am-buff ... 22814.html
Segment 2:
http://www.wkbw.com/programming/am-buff ... 22949.html
I like the way these NEUROS talk about CCSVI! We'll be hearing about the results soon!
A/C
(If these were done before 7/4, day 30 should be around 8/3 when they are allowed to reveal results about the 30-day safety study, right?)
Segment 1:
http://www.wkbw.com/programming/am-buff ... 22814.html
Segment 2:
http://www.wkbw.com/programming/am-buff ... 22949.html
I like the way these NEUROS talk about CCSVI! We'll be hearing about the results soon!
A/C
(If these were done before 7/4, day 30 should be around 8/3 when they are allowed to reveal results about the 30-day safety study, right?)
If you can't explain it simply, you don't understand it well enough. - Al Einstein
Next 20?
The first ten were done the last few days of June, so the safety study is now complete. Anyone know how they fared? Anyone know if the next 20 with the sham treatment have been schedules - treated?
Re: Next 20?
They should be treated imminently. After the first ten were done, they needed a one-month wait before a check-up. That should be it for the 'safety profile' of that bunch so, assuming all was safe, the next step is to do the next twenty.nicknewf wrote:The first ten were done the last few days of June, so the safety study is now complete. Anyone know how they fared? Anyone know if the next 20 with the sham treatment have been schedules - treated?
"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition
- 1eye
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Dr. Levy talked about a continuum of treatment and a subset of 'MS' (only treating RR). I think that is to allow for the possibility of CCSVI treatment failure, at which event neurologists get the case back. See these guys are promoting the point of view that not only are neurology specialists required to 'authorize' the procedure (testing) but also to control treatment, and thus, to assess when drug treatment is the only option left. Also, when drug treatment is the better option (if it is very successful without requiring 'minimally invasive surgery').
That, I think, is because they even now are not considering the possibility that 'MS' patients will vote with their feet and decide for themselves what kind of specialist they need. They will, anyway. Does anyone think people who have the option of a Dr. Sclafani or a Dr. Mehta, will let their GPs tell them they must consult a team of neurologist and neurosurgeon? These doctors all publish papers, and it is going to be the doctors with the best treatment record, and the best explanation of it, to whom people will go. All options are back on the table, in free countries, such as the ones where people are traveling.
I am frankly surprised that in 2010, we still don't know if a spinal lesion is caused by blood, or whether disability is caused by problems in motor centers in the brain, or by problems in the spinal cord. Doesn't handedness reverse outside the brain? I have never heard of any direct mapping between brain locations and symptoms, though I do believe the technology must exist to do this (PET scans?).
I think we have been too long drug-focused and spent too much money developing drugs, without learning enough mechanism. But that's just me.
That, I think, is because they even now are not considering the possibility that 'MS' patients will vote with their feet and decide for themselves what kind of specialist they need. They will, anyway. Does anyone think people who have the option of a Dr. Sclafani or a Dr. Mehta, will let their GPs tell them they must consult a team of neurologist and neurosurgeon? These doctors all publish papers, and it is going to be the doctors with the best treatment record, and the best explanation of it, to whom people will go. All options are back on the table, in free countries, such as the ones where people are traveling.
I am frankly surprised that in 2010, we still don't know if a spinal lesion is caused by blood, or whether disability is caused by problems in motor centers in the brain, or by problems in the spinal cord. Doesn't handedness reverse outside the brain? I have never heard of any direct mapping between brain locations and symptoms, though I do believe the technology must exist to do this (PET scans?).
I think we have been too long drug-focused and spent too much money developing drugs, without learning enough mechanism. But that's just me.
This unit of entertainment not brought to you by FREMULON.
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
Not a doctor.
"I'm still here, how 'bout that? I may have lost my lunchbox, but I'm still here." John Cowan Hartford (December 30, 1937 – June 4, 2001)
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- Family Elder
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And me.Rokkit wrote:And me.1eye wrote:I think we have been too long drug-focused and spent too much money developing drugs, without learning enough mechanism. But that's just me.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
They said that they will wait a month, then write an article, then have it peer reviewed and published in a scientific journal. Think we have to be patient a little longer... though it's hard.
I guess they way things went when they published their initial findings via press release wasn't really what they wanted (much debate and confusion about their numbers).
I guess they way things went when they published their initial findings via press release wasn't really what they wanted (much debate and confusion about their numbers).
"There is only one good, knowledge, and one evil, ignorance." Socrates
- fogdweller
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All true, but I don't think they wait for the publication before going on with the trial. The FDA or the IRB or both can approve begining the efficacy portion of the trial prior to publication. We will have a good idea about saftey if they start doing the next set of patients.cah wrote:They said that they will wait a month, then write an article, then have it peer reviewed and published in a scientific journal. Think we have to be patient a little longer... though it's hard.
I guess they way things went when they published their initial findings via press release wasn't really what they wanted (much debate and confusion about their numbers).
- ozarkcanoer
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bruce,
Funds for the BNAC studies are coming from grassroots fundraising. Direct-MS (Ashton Embry) has made 3 challenge grants to BNAC. To find out how you can help go to :
http://msterypartyccsvi.bnac.net/
ozarkcanoer
Funds for the BNAC studies are coming from grassroots fundraising. Direct-MS (Ashton Embry) has made 3 challenge grants to BNAC. To find out how you can help go to :
http://msterypartyccsvi.bnac.net/
ozarkcanoer
In fact, it was even worse. Every book or article starts with "MS is an autoimmune disease in which mielyn is ....". Nobody ever cared to proof that, and nobody ever questioned the dogma. Very weird.1eye wrote:I think we have been too long drug-focused and spent too much money developing drugs, without learning enough mechanism. But that's just me.
Even more weird when somebody tries to find a definition for MS. There is none. There is only something about scars in the brain, which are never properly defined or even described.
The whole research procedure has been a big piece of shit. It is funny that the same people that performed it now claims that CCSVI research is anti-scientific.
- Squeakycat
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