Absolutely. Word of mouth. I'd give more, for your chances at disseminating information, if you were a hairdresser, than if you were, for example, a New York Times reporter. That is just, as they say, the way things are. The problem really is that so many neurologists feel personally threatened, and spread the 'word' about CCSVI, to people who depend on them, like we do on Cheerleader, to be truthful. Another hiccup is, so many GPs depend on the NYT, as well as neurologists, and participate in this gossip. But that, in the end, is the newspaper's problem, not yours. I gave up on them, after talking to my first biased reporter. Mere laziness can slant their stories. Keep on telling people: treatment for CCSVI cures some people, improves and saves the lives of others. The blog or whatever it is, sounds on the surface, like the truth, but it's a lie.
Just take one innocuous sounding bit. "3. MS occurs in multiple venous distributions." So? Don't they all of them get to the heart through those big veins in the neck and back? Or are we considering corollaries?
I think the important thing is that these distributions (of what, you may ask, if not veins?) are all venous. The fact they are multiple does not say anything against CCSVI's existence, or against the fact that CCSVI causes the constellation (that is, collection) of symptoms, known by most people until this decade, as 'Multiple Sclerosis'. That's what the V in CCSVI stands for, Venous. Assuming, mind you, that most people, including those with 'MS', have mostly the same major veins.
If it's scleroses (not distributions, or veins) that are multiple, well, that's a mite redundant, but no-one is arguing 'MS' occurs in them. "Oh, it's multiple venous distributions of sclerosis that 'MS' occurs in. That's very different. Never mind."
Come on, give it a rest. As Dudley Moore said in Beyond The Fringe, "Don't say 'Will this wind,' we don't want to hear "Will this wind" again, that would be a most tedious experience. What we want to know is, 'What will this wind?'"
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
I am not a doctor. Do not take anything I say as medical advice.