This Is MS Multiple Sclerosis Community: Knowledge & Support

CCSVI Treatment Update

We are delighted to inform you that we should soon be in a position to open up several treatment centres for CCSVI and intervention across the UK, which will enable us to see more patients and in a quicker timeframe. These extra centres will build on the foundation we have already laid, but also be able to offer the intervention procedure as well as the scanning.

It became clear that we should not rely on a single treatment provider for the balloon venoplasty interventions in those with CCSVI lesions, and it was for this reason we have been in discussions with several medical providers; including one of the largest private hospital groups in the UK.

The demand for screening and treatment for CCSVI with us, has been so high that it is vitally important that we have a secure base on which to proceed. Working with major medical organisations gives much greater security for developing a UK based treatment for CCSVI, although this has taken a little more time than we originally anticipated.

We are planning to collect data on all those we treat as part of a formal research project that requires ethics research approval and we are currently working on achieving this as quickly as possible. These requirements will mean that actual interventions may be slightly delayed, however we will be opening more appointments for the months of September and October to people on our waiting list. We still anticipate seeing and treating everyone on our waiting list before the end of the year and this could be even sooner once we have multiple sites in place.

We realise that this could result, in the short-term, that intervention treatment will not be available within the seven day timeframe that we would ultimately like. Anyone from overseas, who has a confirmed appointment, will receive a phone call from us, to discuss this in more detail.

We believe that we will have a much more robust system with these new developments and we will have built a team of first rate Interventional Radiologists who will offer treatment in state of the art private hospitals in the UK. The standards of this treatment will be second to none and combined with our comprehensive package of MS treatments, will give a world class service for us to be proud of.

We have already had interest from treatment centres overseas who wish to replicate our other MS treatments and 'know-how' as an adjunct to CCSVI treatment and more information on this will be released through our newsletter and website.

We do understand that you are anxious for information, and we can assure you that we will email this out as soon as we have it. We would prefer you not to ring our clinic as our phone lines are becoming swamped, however we will answer your queries by email or using our live link from our website.

We look forward to meeting you soon when you join the growing numbers who are visiting us for CCSVI treatments each day.

Thank You

This is great ! They are going to combine CCSVI treatment with a study ! What more could we want. Thanks for the information.

ozarkcanoer