Essential Health Clinic UK Update

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Essential Health Clinic UK Update

Postby L » Fri Jul 02, 2010 9:33 am

I just received this emai:

CCSVI Treatment Update

We are delighted to inform you that we should soon be in a position to open up several treatment centres for CCSVI and intervention across the UK, which will enable us to see more patients and in a quicker timeframe. These extra centres will build on the foundation we have already laid, but also be able to offer the intervention procedure as well as the scanning.

It became clear that we should not rely on a single treatment provider for the balloon venoplasty interventions in those with CCSVI lesions, and it was for this reason we have been in discussions with several medical providers; including one of the largest private hospital groups in the UK.

The demand for screening and treatment for CCSVI with us, has been so high that it is vitally important that we have a secure base on which to proceed. Working with major medical organisations gives much greater security for developing a UK based treatment for CCSVI, although this has taken a little more time than we originally anticipated.

We are planning to collect data on all those we treat as part of a formal research project that requires ethics research approval and we are currently working on achieving this as quickly as possible. These requirements will mean that actual interventions may be slightly delayed, however we will be opening more appointments for the months of September and October to people on our waiting list. We still anticipate seeing and treating everyone on our waiting list before the end of the year and this could be even sooner once we have multiple sites in place.

We realise that this could result, in the short-term, that intervention treatment will not be available within the seven day timeframe that we would ultimately like. Anyone from overseas, who has a confirmed appointment, will receive a phone call from us, to discuss this in more detail.

We believe that we will have a much more robust system with these new developments and we will have built a team of first rate Interventional Radiologists who will offer treatment in state of the art private hospitals in the UK. The standards of this treatment will be second to none and combined with our comprehensive package of MS treatments, will give a world class service for us to be proud of.

We have already had interest from treatment centres overseas who wish to replicate our other MS treatments and 'know-how' as an adjunct to CCSVI treatment and more information on this will be released through our newsletter and website.

We do understand that you are anxious for information, and we can assure you that we will email this out as soon as we have it. We would prefer you not to ring our clinic as our phone lines are becoming swamped, however we will answer your queries by email or using our live link from our website.

We look forward to meeting you soon when you join the growing numbers who are visiting us for CCSVI treatments each day.

Thank You
Last edited by L on Fri Jul 02, 2010 6:36 pm, edited 1 time in total.
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Postby ozarkcanoer » Fri Jul 02, 2010 9:38 am

This is great ! They are going to combine CCSVI treatment with a study ! What more could we want. Thanks for the information.

ozarkcanoer
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Postby mangio » Fri Jul 02, 2010 12:24 pm

Excellent news.
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Postby L » Fri Jul 02, 2010 6:38 pm

ozarkcanoer wrote:This is great ! They are going to combine CCSVI treatment with a study ! What more could we want. Thanks for the information.

ozarkcanoer


Yes! And hopefully in London too. I mean, I love Glasgow but London is, um, here.
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Postby Interrupted » Fri Jul 02, 2010 6:50 pm

Wow, I wonder how quickly that'll get overruled by someone or other on a technicality amidst a sea of worried neurologists. I genuinely hope this happens, bring on the controversy!
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Private Treatment in UK

Postby MarkW » Sat Jul 03, 2010 1:39 am

Private treatment in the UK is well established. I have no doubts that these doctors know the registration procedures they must follow. Other Doctors (eg MS Neuros) may call them charletains but will find if difficult to close them down, unless deaths or injuries occurs (possibly why they will not offer stents). It is possible to have operations such as breast enlargement, penis enlargement, gastric band, etc etc in the UK.
De-stenosis of major veins by balloon venoplasty will be another procedure on the list for Private Medicine. The study is a good idea but the study group will be 'pwMS with money' not a statisically normal MS population.

Kind regards,
MarkW
Mark Walker - Oxfordshire, England. Registered Pharmacist (UK). 10 years of study around MS.
Mark's CCSVI Report 7-Mar-11:
http://www.telegraph.co.uk/health/8359854/MS-experts-in-Britain-have-to-open-their-minds.html
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lorenzo oil

Postby silverbirch » Sat Jul 03, 2010 4:56 am

As I am due in Scotland next week for the first round of screening

Stenonios does any one know what the accepted level of stenonis is prior to ballooning ? Does it vary from country to country or trial to trial ? I will ask this question at EHC but wanted some backround if possible.

Also has anyone been watching Lorenzo Oil recent showing on ITV 3 its a must watch in light of CCSVI nick noltie and Susan ??? its a lovely film but the corralation to trials, neuro back footing , the trust that is their to protect , guide (simular to ms society ) lets paitents down in the same way. But all in all it came great in the end .
This nueurological desease killed with in 24 months watch the film unfold and the cure simple this story has lead the way to the myleing repair that is underway today .
The fight is so simular and it was in 1992 not that long ago
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Postby welshman » Sat Jul 03, 2010 4:48 pm

I also rec'd this info from Essential Health - I only hope that the "ethics research approval" they talk about (Para 4) doesn't result in a similar rejection as happened to Dr Sclafani - see forum Dr Sclafani answers questions and go to about page 150.
Maybe the UK establishment for reviewing research proposals will not be as inane as those who looked at Dr Sclafani's request / proposal in New York - for all you UK MS'ers, I certainly hope so !!!!!!
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Postby silverbirch » Mon Jul 05, 2010 9:00 am

As I understand it CCSVI is now recognised as a Vascular Disease in its own form and has been logged into medical books (June) as a stand alone Vascular condition.

The above set aside and the Junk Science as it was labelled back in the day ... has now been put in the bin and the above accepted, recognised.

The next stages is that the correlation between CCSVI and other diseases e.g MS the same guy Dr Z will prove its correlation.

The fact that it has to be drip fed to protect some Stone Age fraternity is a shame.

Poor Dr Scalfani well that’s nothing short of a witch hunt from the Stone Age Dr’s he will get the recognition he deserves.


As for closures of clinic's offering CCSVI that was before CCSVI was accepted, and no procedures or guidelines these are now fast tracking along vascular guys will put their foot down and will fine tune it all working professional with others . No pharmo guys propping up their charity accounts these guys have had to earn their money, no easy street for them and no sheep in this bunch.
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Postby EJC » Mon Jul 05, 2010 1:07 pm

We're also due up to Glasgow next week, Monday morning (flying up Sunday night).

I'll post findings upon my return.

Emma is getting all worked up about getting there, having the scans and them finding no issue. She worries about problems before they happen.

My concern is the opposite, that they find something in every patient they scan in order to undertake the procedure.

My intention at this stage (as dates for liberation are yet to be set) is take the scan, gain as mutch information as I can, then get a referal down here from my doctor to a vascular surgeon for a second opinion on the points raised.

I'm not a sceptic, quite the opposite in fact. Just consider me thorough.
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