NEUROLOGIST seeking info

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

NEUROLOGIST seeking info

Postby dania » Fri Jul 02, 2010 12:05 pm

My neurolgist is interested in the following info

We would very much like to understand what transient and what persistent responses occur with the various procedures are being done. If you know of anyone who has a persistent or delayed positive response (6 months or more), we would like to get this information.
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Postby 1eye » Fri Jul 02, 2010 12:35 pm

you've come to the right place!
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
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Re: NEUROLOGIST seeking info

Postby cheerleader » Fri Jul 02, 2010 1:03 pm

dania wrote:My neurolgist is interested in the following info

We would very much like to understand what transient and what persistent responses occur with the various procedures are being done. If you know of anyone who has a persistent or delayed positive response (6 months or more), we would like to get this information.


Dania-

My husband and many others had immediate and continued relief in areas such as fatigue, cognitive fog, heat intolerance, spasms, sleep apnea and headaches. Several doctors believe this is more a function of relief in venous insufficiency, rather than neurological healing.

My neighbor D was wheelchair bound, had venous angioplasty and stenting and is now up and about and walking a year after her procedure. She also had rigorous physical therapy after her treatment. Dr. Zamboni reports on continued QOL benefits for patients 18 months out from their procedures in his rationale for endovascular treatment paper.
http://www.fondazionehilarescere.org/pdf/CX.PDF
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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