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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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1eye
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PostPosted: Fri Jul 09, 2010 11:17 pm 
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Location: Kanata, Ontario, Canada
She should sue the MS Society for using her image without permission.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
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SoberSandy
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PostPosted: Sat Jul 10, 2010 7:09 am 
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I am so thrilled for Barb, Patrick and their son. Can you imagine being given such a gift. To be facing the end of your life and now everyday improving and improving. Off the feeding tube!!! This is so amazing. I wish them all the best.
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pklittle
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PostPosted: Sat Jul 10, 2010 11:24 am 
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pklittle wrote:
Is Barb still confined to bed? Or is she in a wheelchair now?


quoting myself.. anyone know?
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mangio
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PostPosted: Sat Jul 10, 2010 11:32 am 
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1eye,

Someone posted documents on f.b. (ccsvi ms toronto) of correspondence
between various health agencies in Ontario. It's interesting.
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thornyrose76
 Post subject: Re: Incredible
PostPosted: Sat Jul 10, 2010 2:19 pm 
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Gordon wrote:
THIS SHOULD BE DOCUMENTED IN GREAT DETAIL and the powers that be in Ontario charged with attempted murder.


Yes, many people should pay a high price for what is going on in this
country. It is simply sick. Sick.
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walcat
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PostPosted: Sat Jul 10, 2010 8:15 pm 
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I'm am so thrilled for Barb and her family. I am glad she continues to improve everyday!!!
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Chrystal
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PostPosted: Sun Jul 11, 2010 3:24 pm 
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This is such wonderful news. So happy for Barb, Patrick and John.

Barb, we keep you and your family close in thoughts and prayers, and we wish you continuing and lasting improvements!!!
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Lyon
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PostPosted: Sun Jul 11, 2010 4:40 pm 
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Last edited by Lyon on Sun Nov 20, 2011 7:56 pm, edited 1 time in total.

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L
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PostPosted: Sun Jul 11, 2010 5:14 pm 
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Lyon wrote:
I've already resigned myself to being a bad guy for raising the issue but the only link to the only info I can find is the link to the facebook page which hasn't been updated in almost 10 days old (July 2) http://www.facebook.com/notes/ccsvi-in- ... 9820807210 which doesn't seem much more descriptive other than to let the reader know that she was still alive at that point.

I want to see her make a miraculous recovery but am I missing some newer/more descriptive information?

Some Facebook page wrote:
Update on Barb Farrell from Patrick--
Share
Friday, July 2, 2010 at 3:18pm
Thanks to Jenny for compiling these posts from Patrick from last week. I know many have been thinking of and praying for Barb, since she was flown to the US for her angioplasty. Here's her update from Barrie--

Monday, Barb was moved to a new unit where she can get physio (!)---

"She is being moved to XXXX unit, where she can get the physio and long term care she needs. It's a new, top drawer facility.
Unfortunately we have to say goodbye to the fantastic staff on her floor"
(I put the XXXX in for confidentiality reasons.)"

Tuesday, Barb is in the new facility

"Barb is doing great. The facillity is wonderful and the staff are warm wonderful and the Dr's actually listen to me.
Still going to miss 3NB Folks - superb people!
For visiting, kindly follow the rules and respect Barb's wishes.
Another long day another milestone.
Thanks for all your support.
With Love and Hope
Patrick (and John who is sleeping but isgoing to run me ragged tomorrow):) "


Oh Lyon, admit it, you love the role. Give it some time. Just be thankful that she isn't using a feeding tube any longer.
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Lyon
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PostPosted: Sun Jul 11, 2010 5:38 pm 
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Last edited by Lyon on Sun Nov 20, 2011 7:56 pm, edited 1 time in total.

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Cece
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PostPosted: Sun Jul 11, 2010 5:40 pm 
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I didn't put a link but the latest update was on july 9th, 2 days ago. Search the facebook page and you might find it but I reposted it in its entirety earlier in this thread.

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Lyon
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PostPosted: Sun Jul 11, 2010 5:43 pm 
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Last edited by Lyon on Sun Nov 20, 2011 7:55 pm, edited 1 time in total.

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L
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PostPosted: Sun Jul 11, 2010 6:19 pm 
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Lyon wrote:
Nah, actually I liked the old days when we could disagree about something on thisisms and still discuss it rationally, although I am starting to see some hopeful signs here again recently.


What's all this yearning for the golden days of thisisms recently?

I remember it being just the same except everyone was (slightly less) excited about HDC and tovaxin.
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Lyon
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PostPosted: Sun Jul 11, 2010 6:45 pm 
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Last edited by Lyon on Sun Nov 20, 2011 7:54 pm, edited 1 time in total.

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L
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PostPosted: Mon Jul 12, 2010 2:10 pm 
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Just saw this on Denise Manley's facebook page

Quote:
Barb Farrell news from Diana Gordon, "I can't believe how much better Barb is; her voice is MUCH stronger. She says it's like she's a new person!! :)"
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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