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PostPosted: Tue Oct 12, 2010 6:10 pm 
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Cece wrote:
I think the results of that procedure (she started with a do-not-rescustitate order, she regained the ability to speak and write and sit up) are a testament to Dr. Siskin's skill.


..and a testament to the lack of compassion within the Canadian Health Care System. Treatment is still denied regardless of need. :cry:


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PostPosted: Sun Oct 17, 2010 10:45 am 
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I am so pleased and emotionally uplifted to report that Barb is going home-as reported by her husband Patrick today on Facebook---

Quote:
Barb is coming home November 4th! She had a quick visit on Thursday and loves the paint-job in the master bedroom and dining room. Brownie points for Patrick!



This is a woman who was bed-bound, on life support with a feeding tube. Who could not speak or move. She is now swallowing on her own, writing again, speaking, smiling, eating, laughing, moving limbs and able to go home to her husband and son. Because some people cared enough to help another human being--a woman told she was beyond help. People paid to airlift her to a clinic in Albany, where she was found to have severely stenosed veins throughout her body--from her lumbar to azygos to jugulars. These veins were repaired, to the best of her doctor's growing abilities...and Barb is alive and healing today.

I would hope that this thread can remain a place to report Barb's status updates, as they come in from Patrick and her son. thank you--
cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS


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PostPosted: Sun Oct 17, 2010 10:55 am 
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This is so wonderful! Thanks for the update. Hard to dispute the wonderful
effects of ccsvi for many patients.


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PostPosted: Sun Oct 17, 2010 11:02 am 
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thanks for the post Joan. Facebook moves so fast, that unless you happen to be on at the right time, you miss the best stuff.

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always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.


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PostPosted: Sun Oct 17, 2010 12:40 pm 
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Thanks for the fantastic update!!! Very happy for their family.


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PostPosted: Sun Oct 17, 2010 2:10 pm 
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Such a wonderful testimony to everything that's being done and being learned.

God bless the Farrell family, the doctors who helped her, and all the pioneers bringing CCSVI to the forefront. My darling man is one of those people. He doesn't think he's anything special but he's my superhero.

I pray for hope and healing for anyone dealing with the insidious disease called MS.


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PostPosted: Sun Oct 17, 2010 4:50 pm 
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cheerleader wrote:
I am so pleased and emotionally uplifted to report that Barb is going home-as reported by her husband Patrick today on Facebook---

Quote:
Barb is coming home November 4th! She had a quick visit on Thursday and loves the paint-job in the master bedroom and dining room. Brownie points for Patrick!



This is a woman who was bed-bound, on life support with a feeding tube. Who could not speak or move. She is now swallowing on her own, writing again, speaking, smiling, eating, laughing, moving limbs and able to go home to her husband and son. Because some people cared enough to help another human being--a woman told she was beyond help. People paid to airlift her to a clinic in Albany, where she was found to have severely stenosed veins throughout her body--from her lumbar to azygos to jugulars. These veins were repaired, to the best of her doctor's growing abilities...and Barb is alive and healing today.

I would hope that this thread can remain a place to report Barb's status updates, as they come in from Patrick and her son. thank you--
cheer


Thanks oh leader of cheer. Nice to get good news.

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience


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PostPosted: Sun Oct 17, 2010 7:59 pm 
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and again i am reminded how wonderful this big old world and everyone in it can be :) L is G :) sigh


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PostPosted: Sun Oct 17, 2010 8:06 pm 
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Wow, the world needs to hear Barb's story - lets keep spreading it to all we know.


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PostPosted: Sun Oct 17, 2010 8:49 pm 
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Barb,
keep up the good work! So happy to hear you are going home in November! I hope they can get the local marching band to escort you out the door of the hospital! Freedom! It is real. Every day is better.
One year for me now, and I still see daily improvements.
We are all thrilled to follow your journey.
Thank you for sharing!
Rose2 :)


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PostPosted: Sun Oct 17, 2010 8:50 pm 
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AND YOU MAKE ONE HELL OF A PLACEBO!! :lol: :lol: :lol:
ROSE2


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 Post subject:
PostPosted: Mon Oct 18, 2010 11:11 am 
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cheer,
thank you for bringing us this thrilling news. :D
patrick, thank you for taking the time at this busy time to let us know.
all you other forum friends who have had recent intervention, best wishes for your journey back to yourself. :)
rose2, thank you for your update. all this is so good to hear.
peace & health.
elyse


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 Post subject:
PostPosted: Thu Oct 21, 2010 1:41 pm 
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bomp

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"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience


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 Post subject: Re: Incredible
PostPosted: Fri Nov 05, 2010 9:12 pm 
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Gordon wrote:
THIS SHOULD BE DOCUMENTED IN GREAT DETAIL


All my love to Barb and family. Thrilled to hear such miraculous news! Could you please write a more descriptive story of Bar's medical hardship's and improvements. I'd like to share this with my favorite Congressman here in the USA to help further document CCSVI and it's story. I promise he is the most couragous and heartfelt representative. I also hope this will help Canada's effort to approve treatment. Please write a concise 1 page document. Sound doable? Thank you for your invaluable participation. Much love, hope and hopeful action! Thank you! If anyone else can put me in touch with the Farrell family, don't hesitate to phone me. Very grateful and many, many thanks!


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 Post subject: Re: Incredible
PostPosted: Fri Nov 05, 2010 11:39 pm 
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hh wrote:
Gordon wrote:
THIS SHOULD BE DOCUMENTED IN GREAT DETAIL


Could you please write a more descriptive story of Bar's medical hardship's and improvements. I'd like to share this with my favorite Congressman here in the USA to help further document CCSVI and it's story. I promise he is the most couragous and heartfelt representative. I also hope this will help Canada's effort to approve treatment. Please write a concise 1 page document. Sound doable? Thank you for your invaluable participation. Much love, hope and hopeful action! Thank you! If anyone else can put me in touch with the Farrell family, don't hesitate to phone me. Very grateful and many, many thanks!


1eye and cece can do magic with words. Hope they will oblige ...

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A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
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