Barb Farrell update

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby PCakes » Tue Oct 12, 2010 5:10 pm

Cece wrote: I think the results of that procedure (she started with a do-not-rescustitate order, she regained the ability to speak and write and sit up) are a testament to Dr. Siskin's skill.


..and a testament to the lack of compassion within the Canadian Health Care System. Treatment is still denied regardless of need. :cry:
User avatar
PCakes
Family Elder
 
Posts: 849
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada

Advertisement

Postby cheerleader » Sun Oct 17, 2010 9:45 am

I am so pleased and emotionally uplifted to report that Barb is going home-as reported by her husband Patrick today on Facebook---

Barb is coming home November 4th! She had a quick visit on Thursday and loves the paint-job in the master bedroom and dining room. Brownie points for Patrick!



This is a woman who was bed-bound, on life support with a feeding tube. Who could not speak or move. She is now swallowing on her own, writing again, speaking, smiling, eating, laughing, moving limbs and able to go home to her husband and son. Because some people cared enough to help another human being--a woman told she was beyond help. People paid to airlift her to a clinic in Albany, where she was found to have severely stenosed veins throughout her body--from her lumbar to azygos to jugulars. These veins were repaired, to the best of her doctor's growing abilities...and Barb is alive and healing today.

I would hope that this thread can remain a place to report Barb's status updates, as they come in from Patrick and her son. thank you--
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
User avatar
cheerleader
Family Elder
 
Posts: 5094
Joined: Mon Sep 10, 2007 2:00 pm
Location: southern California

Postby nellie » Sun Oct 17, 2010 9:55 am

This is so wonderful! Thanks for the update. Hard to dispute the wonderful
effects of ccsvi for many patients.
User avatar
nellie
Family Member
 
Posts: 95
Joined: Wed Jul 21, 2010 2:00 pm

Postby msgator » Sun Oct 17, 2010 10:02 am

thanks for the post Joan. Facebook moves so fast, that unless you happen to be on at the right time, you miss the best stuff.
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
User avatar
msgator
Family Elder
 
Posts: 103
Joined: Wed Mar 17, 2010 3:00 pm
Location: USA

Postby Cece » Sun Oct 17, 2010 11:40 am

Thanks for the fantastic update!!! Very happy for their family.
Cece
Family Elder
 
Posts: 9054
Joined: Mon Jan 04, 2010 3:00 pm

Postby Trish317 » Sun Oct 17, 2010 1:10 pm

Such a wonderful testimony to everything that's being done and being learned.

God bless the Farrell family, the doctors who helped her, and all the pioneers bringing CCSVI to the forefront. My darling man is one of those people. He doesn't think he's anything special but he's my superhero.

I pray for hope and healing for anyone dealing with the insidious disease called MS.
User avatar
Trish317
Family Elder
 
Posts: 357
Joined: Sat Sep 06, 2008 2:00 pm
Location: Rhode Island

Postby 1eye » Sun Oct 17, 2010 3:50 pm

cheerleader wrote:I am so pleased and emotionally uplifted to report that Barb is going home-as reported by her husband Patrick today on Facebook---

Barb is coming home November 4th! She had a quick visit on Thursday and loves the paint-job in the master bedroom and dining room. Brownie points for Patrick!



This is a woman who was bed-bound, on life support with a feeding tube. Who could not speak or move. She is now swallowing on her own, writing again, speaking, smiling, eating, laughing, moving limbs and able to go home to her husband and son. Because some people cared enough to help another human being--a woman told she was beyond help. People paid to airlift her to a clinic in Albany, where she was found to have severely stenosed veins throughout her body--from her lumbar to azygos to jugulars. These veins were repaired, to the best of her doctor's growing abilities...and Barb is alive and healing today.

I would hope that this thread can remain a place to report Barb's status updates, as they come in from Patrick and her son. thank you--
cheer


Thanks oh leader of cheer. Nice to get good news.
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2999
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada

Postby PCakes » Sun Oct 17, 2010 6:59 pm

and again i am reminded how wonderful this big old world and everyone in it can be :) L is G :) sigh
User avatar
PCakes
Family Elder
 
Posts: 849
Joined: Sun Dec 13, 2009 3:00 pm
Location: Canada

Postby garyak » Sun Oct 17, 2010 7:06 pm

Wow, the world needs to hear Barb's story - lets keep spreading it to all we know.
User avatar
garyak
Family Elder
 
Posts: 314
Joined: Sun May 30, 2010 2:00 pm
Location: grande prairie , alberta,canada

Postby Rose2 » Sun Oct 17, 2010 7:49 pm

Barb,
keep up the good work! So happy to hear you are going home in November! I hope they can get the local marching band to escort you out the door of the hospital! Freedom! It is real. Every day is better.
One year for me now, and I still see daily improvements.
We are all thrilled to follow your journey.
Thank you for sharing!
Rose2 :)
User avatar
Rose2
Family Elder
 
Posts: 274
Joined: Sat Sep 12, 2009 2:00 pm
Location: SF area

Postby Rose2 » Sun Oct 17, 2010 7:50 pm

AND YOU MAKE ONE HELL OF A PLACEBO!! :lol: :lol: :lol:
ROSE2
User avatar
Rose2
Family Elder
 
Posts: 274
Joined: Sat Sep 12, 2009 2:00 pm
Location: SF area

Postby elyse_peace » Mon Oct 18, 2010 10:11 am

cheer,
thank you for bringing us this thrilling news. :D
patrick, thank you for taking the time at this busy time to let us know.
all you other forum friends who have had recent intervention, best wishes for your journey back to yourself. :)
rose2, thank you for your update. all this is so good to hear.
peace & health.
elyse
User avatar
elyse_peace
Family Elder
 
Posts: 173
Joined: Thu Dec 31, 2009 3:00 pm
Location: Putnam, NY

Postby 1eye » Thu Oct 21, 2010 12:41 pm

bomp
"Try - Just A Little Bit Harder" - Janis Joplin
CCSVI procedure Albany Aug 2010
'MS' is over - if you want it
Patients sans/without patience
User avatar
1eye
Family Elder
 
Posts: 2999
Joined: Wed Mar 17, 2010 3:00 pm
Location: Kanata, Ontario, Canada

Re: Incredible

Postby hh » Fri Nov 05, 2010 8:12 pm

Gordon wrote:THIS SHOULD BE DOCUMENTED IN GREAT DETAIL


All my love to Barb and family. Thrilled to hear such miraculous news! Could you please write a more descriptive story of Bar's medical hardship's and improvements. I'd like to share this with my favorite Congressman here in the USA to help further document CCSVI and it's story. I promise he is the most couragous and heartfelt representative. I also hope this will help Canada's effort to approve treatment. Please write a concise 1 page document. Sound doable? Thank you for your invaluable participation. Much love, hope and hopeful action! Thank you! If anyone else can put me in touch with the Farrell family, don't hesitate to phone me. Very grateful and many, many thanks!
User avatar
hh
Getting to Know You...
 
Posts: 10
Joined: Sat Mar 27, 2010 3:00 pm

Re: Incredible

Postby sbr487 » Fri Nov 05, 2010 10:39 pm

hh wrote:
Gordon wrote:THIS SHOULD BE DOCUMENTED IN GREAT DETAIL


Could you please write a more descriptive story of Bar's medical hardship's and improvements. I'd like to share this with my favorite Congressman here in the USA to help further document CCSVI and it's story. I promise he is the most couragous and heartfelt representative. I also hope this will help Canada's effort to approve treatment. Please write a concise 1 page document. Sound doable? Thank you for your invaluable participation. Much love, hope and hopeful action! Thank you! If anyone else can put me in touch with the Farrell family, don't hesitate to phone me. Very grateful and many, many thanks!


1eye and cece can do magic with words. Hope they will oblige ...
A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck
User avatar
sbr487
Family Elder
 
Posts: 861
Joined: Tue Nov 24, 2009 3:00 pm
Location: India

PreviousNext

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)

 


  • Related topics
    Replies
    Views
    Last post

Who is online

Users browsing this forum: No registered users


Contact us | Terms of Service