This Is MS Multiple Sclerosis Community: Knowledge & Support

Is ther possibly a movie/documentary that is being made on the Barb Farrell story?

You are kind.

Last June I believe the Farrells were surprised that without signing up for it they'd become such a lightning rod and emotional touchpoint for our CCSVI movement as a whole. Any presentation of their story, which is an incredible and affecting story, would need to be done with their cooperation. Patrick Farrell has posted on Facebook, it is where I'd suggest hh contact him with this idea.

I was thinking about the high points and, sadly, low points of the CCSVI movement so far. Barb's treatment and turnaround is definitely one of the high points.

I am sure that any `potential` movie about Barb Farrell`s life especially in the past few months will bring most people to tears. No make that sobs! It just might make the folks that believe that CCSVI is really nothing stand up and pay attention, finally........... Maybe even get the ball rolling with testing and surgery available to the rest of Canadians. Imagine the possibilities..............

The story would arm the masses with sympathy and support for ccsvi .

hh, can you contact Pat Farrel on FB?
or Christopher A who seems to know them quite closely?

Let me know if you would me to contact them on your behalf.

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A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

Perhaps a project for the CCSVI Alliance to spearhead? What a wealth of CCSVI and MS knowledge, talent, compassion, California (filmmaker?) connections, musical prowess, etc. in that wonderful group!

Of course, only with the Farrells' complete agreement and support.

One can dream....

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CCSVI:  Making Sense of MS

This is a great idea. Even something reasonably small, to be posted on the ccsvi.org webpage. We all know about her story, but watching it would be powerful stuff, and there are many who do not know the full story.

Again though this may not be at all what the family wants in terms of privacy.

1eye twisted the emotional knife, in what he compiled of the Farrell's story, by contrasting it with the story of the lady who posted in drsclafani's thread, who had been recently divorced and was entering a nursing home despite her young age and was seeking the venoplasty treatment. But no doctors were openly treating at that time and sadly she passed away, of complications of MS.

+1! (if Barb and family were happy to)

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28/07/10, 04/10/10, 16/11/10 - Dopplers x3 Ireland, Poland, Scotland.
12/10/10 - 1st procedure, Poland. Symptoms worsened. No improvement.
Verdict: I urge caution + am taking a back seat watching research ATM.
13/02/12 - Started Wheldon ABX protocol.

Can we please do this in a coordination fashion? Write the print version first and then the video version, or at least at the sametime. Most effective when trying to make a valuable point to the Congress here in the USA.

I understand Cece and 1eye are great editors. Would you mind working with the Farrell family and me to tell this story accurately? I'm waiting to get in touch with the family by sbrxxx? (sorry need to take notes). So then we can all work together to make this happen? I'll very much appreciate the cooperation and talent here to make this into a more visible document! Hope you all agree, using Cece and 1eye, Farrell and my participation.

(I'm an MSer, 15 years with M-T and alot of other symptoms. Had the procedure twice, due for a third and maybe again.)

Look forward to more conversation.

hh, sent you a PM ... here is the link to article on Barb ... this can be a good starting point ...

http://www.thebarrieexaminer.com/Articl ... ?e=2636983

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A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its opponents eventually die and a new generation grows up that is familiar with it
- Max Planck

hh, sent you a PM ... here is the link to article on Barb ... this can be a good starting point ...

http://www.thebarrieexaminer.com/Articl ... ?e=2636983[/quote]

Thank you sbr487. Much, much appreciated. Nice story. Liked what cheerleader wrote, just wanted to expand the story-- before hardships and improvements being witnessed today. Hoping Farrell's will work with the story writing. With Cece, 1eye and me. Next steps needed to put us in line. Thank you profusely for this great effort. Look forward to hearing back. Cece/1eye are you in? Hope so. Lovingly, hh

I'd be happy to look over anything that you or 1eye write up and see if I can add to it. Let's hear what the Farrells say first. I think the cart may be getting ahead of the horse; my impression has been that they value their privacy.

Yes, waiting for their approval. Most important. Hoping that comes soon. My letter is done (the Congressman is my dear friend), just need this to add to it. I'll need your's and 1eye's writing skills (if you will) and Farrell's approval. hoping. many thanks.[/i]

Here's the latest news article on Barb--
she's glad to be home....

http://www.thebarrieexaminer.com/Articl ... &e=2844114

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Thank you Joan for posting the link. I think of her daily. Rose