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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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Cece
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PostPosted: Sat Feb 05, 2011 2:31 pm 
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latest update on Barb, from the facebook site:
Quote:
via Patrick Farrell
Barb had her 6 month with Dr. McDonald yesterday and guess what?
Everything is open and flowing the way is is supposed to be and the stent has no issues. Needless to say we're all happy as can be.

great news for this family!
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msgator
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PostPosted: Sat Feb 05, 2011 5:20 pm 
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yea, thanks for the update. I think of her often

Ann

_________________
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
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Drury
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PostPosted: Sat Feb 05, 2011 6:53 pm 
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Thanks Cece that just made my day.

Drury
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hh
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PostPosted: Sun Feb 06, 2011 9:45 pm 
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Drury wrote:
Thanks Cece that just made my day.

Drury


Fabulous news. What improvements? Warm loves and big hugs.
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jackiejay
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PostPosted: Mon Feb 07, 2011 7:11 am 
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this story would be a good follow up for W5 to consider doing.....they seem to be the leaders in the media for CCSVI
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Cece
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PostPosted: Mon Feb 07, 2011 10:00 am 
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hh wrote:
Drury wrote:
Thanks Cece that just made my day.

Drury


Fabulous news. What improvements? Warm loves and big hugs.

Before her procedure in June, she was on a do-not-resuscitate order. Since her procedure, she regained the ability to speak, to do physical therapy, to swallow without choking, to sit in a wheelchair for short periods of time, and was able to go home from the hospital to her husband and son.
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Drury
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PostPosted: Tue Feb 08, 2011 8:46 pm 
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How wonderful!

Drury
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erinc14
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PostPosted: Sun Mar 06, 2011 10:03 am 
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where was she treated ?
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blossom
 Post subject: ccsvi
PostPosted: Sun Mar 06, 2011 9:02 pm 
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great to hear this.
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Blaze
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PostPosted: Mon Mar 07, 2011 6:09 am 
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erinc14 wrote:
where was she treated ?


I think in Albany.
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lovebug
 Post subject: Barb Farrell
PostPosted: Fri Apr 22, 2011 4:09 pm 
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Has anybody heard how Barb is doing these days?
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Cece
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PostPosted: Sat Jul 02, 2011 9:29 pm 
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www.thebarrieexaminer.com/ArticleDisplay.aspx?e=3196335
Quote:
Dr. Sandy MacDonald initially performed about six angioplasty procedures on MS patients at Barrie's Royal Victoria Hospital, but stopped just short of performing one on Barb Farrell last year.

Farrell travelled to the U.S. and paid out of pocket to have the treatment performed.

As her husband Patrick said, she perked up on the operating table, but has since declined due to the immune inhibitors she's taken for years.

"She was two weeks away from death when she had the surgery, the damage was already done," Farrell said. "But even she was able to turn her head and speak right after."

She's not doing well?
That's really upsetting. She has a husband and a child.
The procedure as it was done in June 2010 is so different from how it is done in July 2011.
:(
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eric593
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PostPosted: Sat Jul 02, 2011 9:56 pm 
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Cece wrote:
She's not doing well?
That's really upsetting. She has a husband and a child.
The procedure as it was done in June 2010 is so different from how it is done in July 2011.
:(


She could well have experienced a short term placebo effect last year. Many places are not treating any differently than they did a year ago. There is no evidence that any "new" methods result in any better outcomes than those used in June, 2010. Did I miss some comparative research? Did I miss ANY published research on outcomes at all?

Cece, you know how to search for this...but yet you can't seem to find info about Dr. Oz's tv program on your own???


Last edited by eric593 on Sat Jul 02, 2011 10:00 pm, edited 1 time in total.

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Cece
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PostPosted: Sat Jul 02, 2011 9:59 pm 
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I didn't hear much sympathy for Barb Farrell's decline in your post, eric.
No sympathy at all.
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eric593
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PostPosted: Sat Jul 02, 2011 10:53 pm 
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Cece wrote:
I didn't hear much sympathy for Barb Farrell's decline in your post, eric.
No sympathy at all.


I have never seen Barb Farrell post on TIMS.

My expressions of support for Ms. Farrell are more appropriately shared where she might know about them, and private, rather than a public forum that she does not participate in.

I have better avenues to support her than here which is more public curiosity and comment and discussion on available information about CCSVI which may or may not include personal stories.
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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