I'm doing well. Becky is having problems, but we expected that as they weren't able to stent one jugular due to the position of the stenosis. We're hoping they will eventually be able to invent a stent that will work for her.
We are both very glad we went to Poland. They were very professional and competent. They follow the accepted practice of ballooning only, if possible, and stenting if the ballooning closes while you are being treated. Dr. Simka has written a paper posted on this site about the reasons for not checking the next day or so to see if the angioplastied veins have restenosed. The doctors and Greg did everything in their power for us. We can never thank them enough.
Each site has its own strengths and its own weaknesses. We found Greg, Tomasz, and Dr. Simka would do anything they could for the patients. Their only goal is to help people. They are actually not interested in making money. There was quite a discussion with other patients and the staff while we were there. Some of the patients wanted them to charge more and make money. They were quite adament about just breaking even and wanting to just help people. We found it quite refreshing compared to the U.S. medical services.
Another difficulty they face is that every case presents differently. Each procedure anywhere in the world brings new info about this condition and the procedures done to help it. This info is shared freely with the other doctors doing these procedures.
One thing I found was that if I had a low grade infection of any type, I would regress. As soon as I figured that out, I quickly treated the infection and rapidly improved.
My husband had me fill out a chart scoring each of my symptoms on a scale of 1 to 10 Prior to Poland, Immediately After Poland, and Now - 3 months later. They totaled up to be 168 Prior to Poland, 17 Immediatley After Poland, and 55 Now. I recently was diagnosed with May-Thurners Syndrome. With that fixed, (which will be done some time in the next three weeks), I should recover at least 11 points, so will be at 43.
It certainly is an amazing journey. The twists and turns (pun intended) are amazing to discover and then to figure out what to do about them. Thanks to Cheer and all those who post such terrific data, we are in a much better position to be able to figure out what to do. Cheer's epithialial health program, diet, the role infection plays, giving blood, May-Thurners Syndrome, the way the different doctors treat the same problem, the in-depth research Cheer and others have done....all of this is a gift for us to use to help ourselves as we wend our way through this maze.
And, of course, 50% of the angioplasties do restenos.