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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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thornyrose76
 Post subject: AFTER PROCEDURE
PostPosted: Sat Jul 03, 2010 2:32 pm 
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After one has had the procedure, and are home -whether you have a problem or not- where should you get care, your GP? What about checking your veins? I'm in
Winnipeg Canada so where would I go to get my veins checked to see that everything was alright?
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TMrox
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PostPosted: Sat Jul 03, 2010 5:17 pm 
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Once I got back home (UK) after angioplasty I did the following:

1) Informed my neuro that I had CCSVI and that I had angioplasty (I was naughty and did not tell I was going to be tested).

2) Informed my GP. I showed him the pictures of the venography, angioplasty and letter from my vascular doctor requesting I needed a doppler scan as follow up. My GP referred me to a private hospital to have the test. I had it done about two months ago and it was okay.

3) Changed of neuro. The neuro that had overseen my case was not happy that I had such a risky and experimental treatment. So I found another one that agreed to oversee me after the angioplasty.

4) Have kept in contact with my vascular doc about my progress. I'll see him in two months.
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BadCopy
 Post subject:
PostPosted: Sat Jul 10, 2010 5:53 am 
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Location: 10,000 Lakes
yes, my neuro is against this also. so I am going to start writing to find one that has a mind that is open enuf to be OK with it. I have the procedure in mid August. So if anyone knows a neuro that is open to it in the St Paul area please PM me
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thornyrose76
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PostPosted: Sat Jul 10, 2010 2:14 pm 
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Where are you having the procedure done?
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BadCopy
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PostPosted: Sat Jul 10, 2010 2:55 pm 
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Location: 10,000 Lakes
NY
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tipsyturtle
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PostPosted: Sun Jul 11, 2010 8:01 pm 
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Location: Canada
thornyrose,
I too am from Winnipeg - went to Poland in April. Decided that I will have a doppler at false creek to see where things at at with my veins- figure vancouver is much closer than Poland.
jo

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Katowice, April 7/8
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thornyrose76
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PostPosted: Mon Jul 12, 2010 1:07 pm 
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Yes, exactly, much cheaper. For me either Vancouver or Barrie. What if any difference has it made, have you improved? Are your doctors here in Winnipeg aware that you had the procedure? :)
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tipsyturtle
 Post subject:
PostPosted: Mon Jul 12, 2010 3:08 pm 
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Initially the results were fantastic- but now, three months later I am pretty much back to where i started. Dr. Simka said to give it 6 months but I am planning to get a followup doppler in the next few weeks to see what, if anything has happened.
My neuro knows that I had a procedure but I did not see him prior to it.
Are you planning on getting a procedure?

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Katowice, April 7/8
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thornyrose76
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PostPosted: Mon Jul 12, 2010 6:14 pm 
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I hope to, and soon, probably NY. Did you have stents put in?
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thornyrose76
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PostPosted: Mon Jul 12, 2010 6:16 pm 
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PM me. :)
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Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

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