1 month report after the treatment in Katowice Poland:
Just to remember, I’m a 49 years old female and I had my MS diagnose 20 years ago.
At the moment I’m SPMS and use a wheelchair (my biggest problem is walking and spasticity).
After one month of the procedure in Poland (ballooning of both jugulars and no stents), I have to say that the improvements are very tiny.
I had the procedure in Katowice in 8th of June. I have not felt any improvements, like the other people said they immediate had.
4 or 5 days later, I felt more energy, slept better (but I always did), less fatigue, better transfer from / to wheelchair, bed, toilets. People around me also noticed that. (placebo?, maybe).
Then I had a flu and lost everything. After the flu I started to regain the tiny improvements and by now I can say I’m a tiny better then I was before the procedure (placebo?). And that’s it!
I spoke to the first Doc. that started to perform the procedure here in Lisbon and showed him my exams. He told me that I also have something in my Azigos and ballooning is not enough (in 30 years of practice he have seen , in another conditions not in CCSVI, a lot of reestenosis) .
The good news is that the Prof. said that I should wait 3 or 4 months and then he can treat me.
Although I know that, since I’m SPMS, the best I can expect for is stopping the MS progressing, in my mind I guess I was expecting some kind of miracle.
Unless there is any news (good or bad) I’ll report again in the beginning of September (3 months mark).