This Is MS Multiple Sclerosis Community: Knowledge & Support

1 month report after the treatment in Katowice Poland:

Just to remember, I’m a 49 years old female and I had my MS diagnose 20 years ago.

At the moment I’m SPMS and use a wheelchair (my biggest problem is walking and spasticity).

After one month of the procedure in Poland (ballooning of both jugulars and no stents), I have to say that the improvements are very tiny.

I had the procedure in Katowice in 8th of June. I have not felt any improvements, like the other people said they immediate had.

4 or 5 days later, I felt more energy, slept better (but I always did), less fatigue, better transfer from / to wheelchair, bed, toilets. People around me also noticed that. (placebo?, maybe).

Then I had a flu and lost everything. After the flu I started to regain the tiny improvements and by now I can say I’m a tiny better then I was before the procedure (placebo?). And that’s it!

I spoke to the first Doc. that started to perform the procedure here in Lisbon and showed him my exams. He told me that I also have something in my Azigos and ballooning is not enough (in 30 years of practice he have seen , in another conditions not in CCSVI, a lot of reestenosis) .

The good news is that the Prof. said that I should wait 3 or 4 months and then he can treat me.

Although I know that, since I’m SPMS, the best I can expect for is stopping the MS progressing, in my mind I guess I was expecting some kind of miracle.

Unless there is any news (good or bad) I’ll report again in the beginning of September (3 months mark).

If you are on some antiplatelet drugs (like plavix, clopridogrel) and anticoagulants (like heparin, aspirin) prescribed after procedure, they have antiimflamatory effects and they are reason you felt the improvements you report. It's not necesery to be placebo. These drugs are powerfull, like pulse therapy or else.

Best regards, Mladen.

thanks for posting mtf
hoping the azygous work in 3-4 months will be much more helpful....

thanks.
I'll report back in 3 or 4 months.