This Is MS Multiple Sclerosis Community: Knowledge & Support

I have not been tested for CCSVI yet, but I am wondering if I should go right away because I have type 1 diabetes along with MS. I asked my GP, he told me that it wouldn't add any additional concern that I have diabetes and may have CCSVI. Should I have any additional cocerns? I will have the procedure done with or without Canada's help. But other than for the obvios benefit it could have for my MS, could it cause damage in my body associated with my diabetes if not done sooner rather than later?

DX/2008 PPMS

I can't imagine having both conditions would do any good! But I don't think there's any research or anything to suggest they worsen each other. After angioplasty, diabetes may be a risk factor for greater chance of restenosis so maybe be extra mindful of it or hope to be put on anticoagulants. (Diabetes may be a risk factor for restenosis after angioplasty elsewhere in the body, so my assumption is that it carries over to this part of the body as well, but there's really not a lot to go on! More research needed, as always.)

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition

I also am a type one diabetics with a PPMS diagnosis. My only concern is keeping my kydney's healthy to process the contrasting agent. I do believe that with the extra sugar in the veins/arteries that it makes the testing for CCSVI and procedure if necessary, mandatory for Diabetics. I have no concerns about the procedure and my diabetes. It can only help the circulation. Before I was diagnosed with MS I started having some loss of sensation on my right side. I've been a Diabetic for about 30 years and figured neuropathy had finally caught up with me. I was wrong. I would think opening up the stenosis whether you have MS, Diabetes or a Sore finger has got to be a good thing.

Jim

on the contrary, the two may be linked together by the insufficiency of the veins draining the blood back to the heart. liberation from MS might also cause liberation from diabetes I. I know that it is a big step in our thinking and I am not a doctor either ... but I think that the int'l society for neuro-degenerative diseases recently established by dr. Haacke will look precisely into these sort of issues. and indeed, venous insufficiency in the head and neck could be the cause or condition that can lead to a whole range of neuro degenerative and related diseases.

in this same context, also this seem relevant:

http://www.facebook.com/notes/ccsvi-in- ... 1254652210

http://www.nccn.nl/nccn-en/

That was very interesting Lenard thank you. I am very interested in that article. I've had type 1 diabetes for 38 years, celiac disease since 2001, and diagnosed with PPMS in 2008. So this makes me think what may lie beneath the surface of this exterior of mine. A tangled mess more likely but it keeps life exciting.

JCB, I also had a couple minor incidence 4 to 5 years before I was `diagnosed where I was having some numbness on the left side of my body. I was agreeing at the time with my doctors that it was neuropathy but then I started having a weak right leg and a drop foot. That sealed the deal along with other tests and was diagnosed with MS. In 2000 I started using an insulin pump and never looked back. It has done wonders for controling my blood sugars and after 38 years of diabetes I have not encountered any diabetic related difficulties yet.
(and yes, I did knock on wood)


ReddE

Redde,

Sounds familiar, went on the pump in 2006, should have started years earlier. It makes life a whole lot easier. I would have PM'ed you but thought other people might chime in. Have you had many spine or neck injuries in the past. I am finding most of us diagnosed PPMS between '05 and '10 have had numerous spinal or vertabral issues (trauma). I am wondering if it is either the start of the stenosis or takes the vein blockages to he next level.

Jim

It's funny you should mention that. I had problems with may back do to a lifting incident about 2 years before I was diagnosed. It was a year after that I had to start going to the chiropractor because the pain was getting worse. It helped, but at the time I thought the weak leg I was having was a result of that injury. But later found out it was do to the MS. I don't know why but for the last while now I seem to have a lot of discomfort and pain in my spine from the base of my head to the top of my shoulders. I do have an appointment to go and talk to my chiro about it. Not saying I'm going to have him do anything, just going to talk to him about it