nicko wrote:The ms society is not in our general interest. First off how many members of their board have a direct link with ms? such as family members.
nicko wrote:They are looking for a drug that will help everyone. Not a surgery
nicko wrote:If they all come back showing that ccsvi is found in the same % of healthy controls as msers. Ccsvi research will be stopped in its tracks. No one will argue with the data from seven studies.
erinc14 wrote:“When Jesus Christ raised the dead,” he said, “he didn’t do a double blind study . They’re claiming that chronic cerebrospinal venous insufficiency treatment doesn’t work, but there are thousands of people who’ve had this treatment and are walking around—a large percentage of them are significantly better.”
According to MoneySense, the Canadian MS society spends 48 per cent of their revenue on operating and administrative costs. This is something Simonyi-Gindele says is hindering the progress of offering the more effective treatment.
“They’re a trade industry,” he said. “They represent health care, not patients. If they were for patients, they would see how to make this treatment more available—where instead they are creating obstacles.”
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