This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Sat May 25, 2013 11:13 pm


All times are UTC - 8 hours [ DST ]




Post new topic Reply to topic  [ 34 posts ]  Go to page 1, 2, 3  Next
Author Message
 Post subject: check out this joker...
PostPosted: Thu Jul 08, 2010 6:45 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
http://themscure.blogspot.com/

he had a stem cell transplant and he is "cured". On top of that he is coming down on CCSVI very hard. He is an expert all of the sudden.
He even posted against CCSVI in Rose's blog accusing CCSVI believers that they are only hoping for a cheap solution. He thinks that the cure goes with money...


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:00 am 
Offline
Family Elder
User avatar

Joined: Tue Jun 01, 2010 3:00 pm
Posts: 263
Thanks for the link,

I still have my eyes open for the advances in stem cell. So I'm willing to read the blog of anyone who has had the treatment.

I'm glad to hear that stem cell has worked for this person. That is fantastic.

I was a bit taken back to read the title of the blog as "the cure for MS" and later found out that the blogger really meant by cure "A stopping or halting of the progression of my MS disease"

It is perfectly okay that the blogger defined what is meant by cure so people cannot be mislead. But then continues criticising CCSVI on the grounds that CCSVI is not a cure.

I got confused as what sort of 'cure' was this person talking about? The bloggers' own definition of cure? Because I have not seen Zamboni or any of the researchers involved in CCSVI talking about 'curing MS'


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:07 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
Yes, stem cell transplant may help some in the future. But as i am sure you already know the best way for it to work is to deplete the immune system with tons of chemo prior to the actual transplant. And we are talking very serious chemo here. Not to mention the money involved...
Anyway, he has many thinks to say indeed. But i dont like the way he is attacking Zamboni. So i took some time to reply to him in Rose's blog.

http://medicalmyths.wordpress.com/2009/ ... omment-358

Whatever..


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:17 am 
Offline
Family Elder
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 860
Location: India
All I can say is that Dr. Rose has found another idiot for his company ...

"since MS responds to immune suppressants, it has to be an autoimmune disease" - maybe joke of the year?


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:19 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
Try "of the century"...
If this was the case all that Campath i had wouldnt result in obvious deterioration in 12 months time. I opened those veins and all of the sudden some things are getting better for the first time ever.
There is no clear answer of course. But nobody can say CCSVI is a bullshit without evidence. That's all..


Last edited by costumenastional on Thu Jul 08, 2010 7:22 am, edited 1 time in total.

Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:22 am 
Offline
Family Elder
User avatar

Joined: Tue Jun 01, 2010 3:00 pm
Posts: 263
Thanks for providing the link to your response in Rose blog. I had a laugh. Not at what you said, I agree with you, but I laughed because I have very recently told a similar thing about my angioplasty:

"You payed thousands of dollars to undergo a very dangerous treatment, that can kill people, with totally unpredictable results."

My critic continue saying

"The changes that you report after your angioplasty (no headaches, no pain, no spasms) might be all placebo effect...Shame on you if you continue spreading the news about this CCSVI risky business"

Well I do not about the placebo effect, in the meantime I'm still enjoying all the benefits.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:25 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
No no, i strongly suggest that you go burn your insides right away. There is a chance you ll get rid of your life. But it ll be recorded as success. Cause you wont have MS anymore.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:36 am 
Offline
Family Elder
User avatar

Joined: Tue Jun 01, 2010 3:00 pm
Posts: 263
My friend, I hope you are the prophet from Delphus. :D


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:44 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
I live nearby but i am no prophet :( If i was i would have seen this monster coming and i would have opened my veins when my left hand fingertips went numb back in 2004. Something tells me i would be in a better shape now...


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 7:55 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
The cool thing is that Rose replied to him. He kind of let him down too haha!!! What a nutcase this doc is. I am becoming a fan.


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 8:11 am 
Offline
Family Elder
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 860
Location: India
He is a real creep. He says that he does not believe in stem cell treatment but uses Dr Freedman's statements in his case against CCSVI. The same Dr. Freedman who is vigorously pursuing Stem cell therapy study ...


Top
 Profile  
 
 Post subject:
PostPosted: Thu Jul 08, 2010 8:16 am 
Offline
Family Elder
User avatar

Joined: Sat Jan 31, 2009 4:00 pm
Posts: 740
Location: Greece
He is the coolest i am telling you. If you are on for some laughs, his blog is the place to get it. I mean, everybody needs to laugh no?


Top
 Profile  
 
PostPosted: Fri Jul 09, 2010 7:19 am 
Offline
Family Elder
User avatar

Joined: Wed Jan 06, 2010 4:00 pm
Posts: 296
If you dig deeper, you will note that he has started a Stem Cell Business after coming back ftom Europe.

His timing was impecible... He has been "cured" and started the business spending his money to Help the world so to speak, just as CCSVI broke.


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 09, 2010 7:29 am 
Offline
Family Elder
User avatar

Joined: Tue Nov 24, 2009 4:00 pm
Posts: 860
Location: India
if stem cell success rate is as high as he quotes, why isn't there excitement among the patient community?

With that rate, the multiple sclerosis should be used mostly in past tense ...


Top
 Profile  
 
 Post subject:
PostPosted: Fri Jul 09, 2010 8:10 am 
Offline
Family Elder
User avatar

Joined: Tue Jun 01, 2010 3:00 pm
Posts: 263
Thanks Gordong for sharing the news about this "Stem Cell Business".

I'm looking forward to reading their research papers, clinical trials and so on....


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  [ 34 posts ]  Go to page 1, 2, 3  Next

All times are UTC - 8 hours [ DST ]


Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Sanity check

TFau

0

919

Sat Dec 05, 2009 4:02 pm

TFau View the latest post

There are no new unread posts for this topic. check out some of my pics

[ Go to pageGo to page: 1, 2 ]

costumenastional

27

2575

Sun May 16, 2010 8:30 am

costumenastional View the latest post

There are no new unread posts for this topic. May-Thurner and MS/check it out

[ Go to pageGo to page: 1, 2, 3, 4, 5 ]

Katie41

62

8813

Thu Apr 28, 2011 11:39 am

magoo View the latest post

There are no new unread posts for this topic. Reality check for me

pklittle

10

1526

Wed Nov 10, 2010 12:36 am

Johnson View the latest post

There are no new unread posts for this topic. UK Doppler Check Up

alanbrowne

0

281

Wed Feb 20, 2013 4:40 am

alanbrowne View the latest post

 


Who is online

Users browsing this forum: No registered users


You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to:  


News News Site map Site map SitemapIndex SitemapIndex RSS Feed RSS Feed Channel list Channel list
Read hundreds of Multiple Sclerosis stories on Experience Project. Experience Project is community where people connect through their life experiences. It's made by the same people who built This is MS, on the premise that no single life experience-- like having MS-- defines a person. EP covers over 10 million true stories about every possible life experience. Find yours!


Interesting: Secret Confessions | Dream Meanings | Ask Questions, Get Answers | Song Meanings