Marc is right... It's really sad to see this forum, which was once a place of thoughtful discussions and dialogue, devolve into petty arguments. Granted, when we started talking about Dr. Zamboni back in the dark ages, we were just looking at his research and trying to put the vascular pieces together. There was back and forth, and nay-saying and some incredulity, but it felt like it was doing
something. Or at least, it seemed that way. Not just broken record yo' Mammas.
My husband has three stents in his neck...so, obviously, we drank the CCSVI cool aid. He's a believer. He doesn't post about it online, but he's in NYC talking about it right now. He's in 100+ heat, running around the city, and proud to tell anyone who'll listen that life is different now. But he's an anecdote, and he knows that.
Dr. Embry's article is a good one, but Marc's right, it doesn't address how CRABs stop exacerbations. Jeff is still on copaxone (albeit a much lower dosage since the AAN report) because his first flare up created a lot of damage. He doesn't want another exacerbation. I don't blame him. If copaxone is helping him not relapse, and his opened veins are ridding him of venous insufficiency and all that came with that (fatigue/spasms/heat intolerance/urgent bladder) than it's a win-win. Even Dr. Zamboni suggests that patients remain on their DMDs...because we just don't know what we just don't know. And Dr. Zamboni isn't getting any $ from pharma, you can trust me on that
I hope Marc sticks around, because he's got a balanced outlook, and he understands MS better than almost anyone I've read (well, there's also Marie, Dom, dignan, NHE, Cure, Shayk and Jimmy, maybe--it's a tie) And unlike me and Bob, he lives it. That gives him street cred, in my book...
Please go back and read threads from the olden days (like page 53)...I've tried posting them, but they get buried really fast and I end up self-posting a nd looking like a dork. Just get a flavor of how things used to be, before the CTV program. It was respectful, curious, lots of links to research papers, and there was a sense that we were working together. That didn't mean without skepticism, but maybe because of it. We had to get our sh%t together, because we knew it was important.
love and peace and health for all peoples---