If you have CCSVI therapy please do not be mislead by immediate changes in your condition or if you have none. MS shows enormous variations so you will only get an indication if CCSVI is working for you in 6-12 months.
I tentatively celebrated my new gains post-op, wary of sticking my neck out too far. After 3 months, then off the thinners, things changed even more. Honestly, I don't feel as good as I did the first week, but that's okay, even 80% of that is plenty good enough for me lol. I'm all for people posting their non-gains if that's the case too, but as you well noted, give it 6-12 months before REALLY celebrating.
I don't think the CRABS/NOCRABS debate will be settled in our lifetimes, after all how does one prove that they aren't working, or rather that they are
working, and using what criteria and on what patients?
Seems like the CRABS leave more Q's than A's. CCSVI is kinda
like that, but definitely to a lesser extent, the long term effects and benefits will be just that, long term and out of our observational reach at this point, but the short term stuff is testified to aplenty, both the good and the bad and the neutral.... And that is what I think makes CCSVI so tantalizing, we can
or cannot see "stuff happening" in the short term, and we all certainly hold out a candle of hope that the long term returns trend positive...
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko
, Virtually symptom free since, no relap