MS_HOPE wrote:Some calibration like -10 for worst outcome (poor Holly), 0 for neutral/no change, +10 for complete alleviation of symptoms, and of course anywhere in between.
JoyIsMyStrength wrote:Thanks. If anyone has any more thoughts before Murchy gets too far... please speak up. I realize the most disappointing part may be having words like "positive" and "negative" rather than something more substantial but honestly it's very difficult to wade thru the info and make good comparisons -- someone may have clearer speech, someone else may be walking, so which one is doing "better"?
se1956 wrote:Here are graphs for balance, mobility, edss.... from over 800 treatments.
I think it is a better idea to concentrate all data at one place (ccsvi-tracking.com)
because the largest database is the most reliable.
which one can take with the appropriate grain of salt, but which is nevertheless valuable in its own right.1eye wrote:Ever get anywhere with this? I would have used Excel, easy to understand, but everybody don't have it. What key are you referring to? I would have separate sections for "self-assessed" EDSS, MSFC etc. with a link to instructions for the ambitious. Separate from physician assessed. Can anybody besides neurologists do these tests? There is another piece of contentious real-estate, but nurses usually do the peg, walking, and PASAT in trials, and it ain't rocket science. You can even find PASAT on-line, but it's relatively simple to roll your own, and the MS Society published it. My son made me a pegboard from a block of wood.
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