...also interesting to note that 8 minutes in they have a nice, cheerful voice over woman reading one of my posts from here..and you can see it's TIMS and cheerleader. It was the one conciliatory comment I made regarding the NMSS research money given out this summer. But they didn't have the nice lady read my other sentences, where I ranted that the money was given to insider neurologists rather than vascular doctors.
And they didn't do the follow up on Barb--who is now off the life support wing, and doing physio therapy. Her doctors can't believe her progress.
It is a partial story, edited to make patients and caretakers look like crazed internet groupies. Rather than underlining how venous insufficiency is being found round the world in thousands of pwMS BY ACTUAL DOCTORS --not only Dr. Zamboni. McDonald, Beelen, Sclafani, Dake, Haacke, Hubbard, Siskin, Vogl, Sinan, Haskal, Simka, Tornatore, Lee, Zivadinov, etc..the list grows daily.....these individuals are not bloggers. They are actual doctors who are documenting what they are finding. Sorry, NMMS...we know too much. And the vascular doctors are speaking out.
As we used to say in the olden days of tape----Stuff was left on the cutting room floor.
cheer (who does not sound like the nice voice-over lady)
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09