Venous Disease Coalition?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Venous Disease Coalition?

Postby ikulo » Sat Jul 10, 2010 5:36 pm

Has anyone tried to contact the Venous Disease Coalition? Here is their leadership (CCSVI may be most relevant to Dr. Suresh Vedantham):

Samuel Z. Goldhaber, MD - Chairman
Brigham and Women's Hospital
Representing: North American Thrombosis Forum

Suresh Vedantham, MD - Vice Chair
Washington University School of Medicine, Radiology
Representing: Society of Interventional Radiology

Robert B. McLafferty, MD - Treasurer
Southern Illinois University School of Medicine
Representing: Vascular Disease Foundation

Jeffery Weitz, MD - Secretary
McMaster University Henderson Research Centre
Representing: American Society of Hematology

William Geerts, MD
Representing: American College of Chest Physicians

Randolph B. Fenninger, JD
Senior Public Policy Advisor, Holland & Knight

David Gillespie, MD
Professor, Division of Vascular Surgery, University of Rochester Medical Center

Marilyn Manco-Johnson, MD
Pediatric Hematologist; Director, University of Colorado Denver, Hemophilia and Thrombosis Center

Thomas Ortel, MD, PhD
Duke University Medical Center
American Thrombosis Hemostasis Network

Suman Rathbun, MD, MS
University of Oklahoma Health Sciences Center

http://www.venousdiseasecoalition.org/a ... ership.php
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Postby CureIous » Sat Jul 10, 2010 5:58 pm

Now that's an original post. Far as I can tell, then again most stuff that gets on here was talked about 2008+. Did a search for Venous Disease Coalition, can't find anything. Nice find!

Interesting that's the same guy (Suresh Vedantham)that is treating NASCAR's Brian Vickers, who had to sit out the season due to blod clots/thinners...

Didn't realize they had their own FB page... then again I don't get around much either. http://www.facebook.com/SocietyOfInterv ... y?filter=2

I'm sure he's heard of it all by now.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby ikulo » Sat Jul 10, 2010 6:23 pm

Well out of 156 posts I was due for an original one :D

Interesting tidbit on Dr. Vedantham. He must be pretty good if he is treating such a high profile person. In fact, he "got the cover" of Vein Magazine! http://www.veindirectory.org/magazine/i ... n_v1i3.pdf
Personally I prefer Gisele on the cover of anything, but that's neither here nor there. I can try to reach out him, though it may sound better coming from one of the CCSVI Alliance board members. What do you guys think?
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Postby CureIous » Sat Jul 10, 2010 9:02 pm

ikulo wrote:Well out of 156 posts I was due for an original one :D

Interesting tidbit on Dr. Vedantham. He must be pretty good if he is treating such a high profile person. In fact, he "got the cover" of Vein Magazine! http://www.veindirectory.org/magazine/i ... n_v1i3.pdf
Personally I prefer Gisele on the cover of anything, but that's neither here nor there. I can try to reach out him, though it may sound better coming from one of the CCSVI Alliance board members. What do you guys think?


Yeah maybe send a note to the info at ccsvi alliance.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby bestadmom » Sat Jul 10, 2010 9:40 pm

Thanks for the post. I'm doing the press for the Alliance, so I added the association to our media list. We will reach out to them as soon as the site launches. I'm media@ccsvi.org

Michelle
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