In December 2009, the consensus of the international uni0n of phlebology
(experts from 47 countries from the vascular community) agreed to categorise CCSVI as a type of truncular venous malformation.
Simka testimony in Canada reminded us that the most important question regarding treatment CCSVI is the safety management strategy. Such management has already been recommended by the consensus
http://csvi-ms.net/en/content/consensus ... y-iup-2009
There are plenty of blogs and youtube videos showing venography images consistent with CCSVI. These don't count as evidence, nor the big stenoses I had in my jugular and azygous.
But here are a few articles showing that CCSVI does exist.
The editorial of CMAJ about CCSVI reminds us that the controversy is not on whether CCSVI exists or not. The controversy is whether treating CCSVI can be used as a novel treatment for MS. For that we need research to assess whether the correlation found between CCSVI and MS suggests a causal relation or not. Most importantly whether treating CCSVI could alleviate symtpoms (and relapses) among pwMS. Up to date there is very limited research on that.
People lobbying not to fund CCSVI research are preventing what the CMAJ asked patients: "To demand evidence that such treatment works for MS".
I should demand evidence that leaving blocked veins is good for my health.