This Is MS Multiple Sclerosis Community: Knowledge & Support

I think each State has different rules on donating blood. In NY, if you look at the Blood center's website, one of reasons can't give blood is if had an MS relapse within past two weeks--I think that was the time span. Yet when actually go to donate, they have you fill out a form--and most of the things mentioned on their site are not mentioned at all, including MS--there are few restrictions.

Very helpful, Mark. Thanks.

Pam

I'm stunned people are able to donate blood. I had donated for years, but after my diagnosis of MS (26 years ago), I was told I was on their "permanently deferred list" and would no longer be permitted to donate.

Strange how something like that differs so dramatically in different places. M

are you in the States Blaze? If so, try a blood donation center run by the American Red Cross--they don't exclude MS.

Shye said: "Had one phlebotomy, and felt amazingly better. .... the blood donation of a pint gave me energy I have not had for years (is waning as the time goes by--been a bit over a month--but still is a more even energy than before). And as I say, I will donate again, and see if get same great response.
Still doing research to see why got immediate reaction--since immediately after the blood donation, your WBC, RBC, Hematocrit and hemoglobin all go down (the blood panel takes a few weeks to start going down)--and you would think you would have less energy, not more."


Shye, just a thought. (I'm not a medical person and lack the depth of knowledge of others in this forum.) The most immediate effects of CCSVI treatment often include diminished fatigue, and of course correcting the stenoses eliminates blood reflux into the brain and/or spinal cord. I'm wondering if perhaps decreasing the VOLUME of circulating blood might serve to reduce the reflux, and thus reduce fatigue. Thoughts, anyone?

Shye, please let us know how it goes after your second blood donation!

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CCSVI:  Making Sense of MS

When I called MY local Red Cross site, they told me that MS would definitely exclude me.

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

A couple of thoughts which may be applicable....26 years ago one of the competing medical explanations was that "MS" was the result of an infection. Perhaps they were just being cautious?

Perhaps some virus or bacteria could cause neurological damage; I don't want to completely exclude it as a possible agent in some (probably very limited) cases.

However, I personally am convinced that "MS" is primarily a vascular disorder and is definitely not contagious. Inheritable, yes but not something transmittable via blood donations.

The blood center I go to does not ask per se if you have "MS" but they DO list specific "MS" phrama drugs as disqualifying. As mentioned previously I have never taken any of the neuro's snake oil remedies.

I have just made my fourth donation; and it's on a eight week cycle. They test for a lot of possible conditions (HIV, STD's, hepatitis, etc.) and
seem quite eager to have me keep coming back.

I usually feel better a day or two after the donation (relief from fatigue being the chief improvement) and this gradually wears off as the 8 week cycle progresses.

That to me, at least, is the clue that iron deposition is the main culprit in initiating the cascade of symptoms called "MS."

Donnchadh

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Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

You could ask your GP for a order for a blood, but it would entail some cost this the drawn blood would be discarded and not be considered a donation. But it would be worth a trial to see if it helps.

Donnchadh

_________________
Kitty says, "Take that, you stenosis!"

Got MS?.....Get Liberated!

Euphoniaa and Blaze,
please read the info curIous posted

http://ms.about.com/od/livingwellwithms ... _blood.htm ---it states:



I got my blood drawn at the NYBlood Bank, but they are under the auspices of the American Red Cross--and as I said, they do not exclude MS>

Donnchadh
just curious, have you had your bloods checked since donating? If so, what are the results?? Were you high in iron parameters when you started? what are these now?

I am going to be slightly controversial and just say what I am thinking..if we don't really know what is causing MS, should we really be donating blood? The last thing we want is for someone else to become ill as a result of it.

I just think that there are too many negatives here for people to rush off and donate blood when they have a condition that so far has not really been understood.

And here is what it says in the link above:



And MY local office has decided that I cannot donate. It's probably worth a try to call them and quote the rules, although I asked them since the May 2007 revision. That's why I called them in the first place.

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Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS or MS symptoms except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)

Euphoniaa
Re


In the context, I took that to mean that other blood banks (such as private hospitals) might not allow it.

I would be very assertive in quoting their own Guidlines to them.

Daisy-
it is up to the officials of the blood donation organizations to decide what consitutes a threat as far as blood donations are concerned--not for us as laypersons to make that call.
And they largest organization, the American Red Cross, has ruled MS is not an exculsionary disease.

Interesting, I had not thought of it as possibly a blood volume issue.

What else reduces blood volume? Dehydration?

There was some unrelated research that I turned up that suggested that holding your breath reduces reflux in the brain. (I can find my link on this if anyone has an interest.)

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"However, the truth in science ultimately emerges, although sometimes it takes a very long time," Arthur Silverstein, Autoimmunity: A History of the Early Struggle for Recognition